Welcome You Back to our community! Hey Roy good to see u on MH again : )
I was wondering if you were gonna ever write back too. LOL well I am glad we can talk. I actually just had surgery in WI with Dr. Heffez.. I'm feeling ok but, I just wish I felt better.. Anyways, I posted in the Chiari Forum if you would like to read it!
Thanks for getting back to me.!
I hope u are enjoying this NASTY weather we are having.. I hope this is NOT how our winter is gonna be..
I hope all is well! Have a warm day!
Thank you! I tried to make an appt with Dr Oro HOWEVER, you have to have at least a 5mm herniation before they will see u............ That's the first place I called... I didn't have a measurement until after I seen Dr H in WI and even if I would have had a measurement he still wouldn't have seen me, I guess my herniation is only 4mm but Dr H said that it's not really the size that matters, its the crowding and apparently I have a lot of it at the brainstem.... I'm gonna try to get a second opinion from Dr Reeder in SD... That would definitely be closer than WI! LOL
Thank you again for your thoughts!
Have a good day!
Thank you! and nice to meet you, I'm Jen and live in Lincoln.. I too hope things are going well for u or atleast better. It seems as though competent doctors are few are far between! hahaha
Thank you for the note it made me smile through this crappy headache today!
Just a quick note to say hi! i am new to the site i have chiari considering surgery mine is only 3mm but very problamatic
I am so happy for you and your girls! I am doing alright got a very bad 4 day migraine 2 weeks ago and have just realized that the surgery was not the end but the beginning of this adventure. Very glad I got the surgery as I am better but still have a headache everyday but my kids and husband keep me going! How are you feeling? Thanks for touching base and hope you are well!
Wow you should be proud of your girls!! I have a 6 and 8 year old and yes family comes first. I have to tell you am 3 months out and starting to get the pressure headaches again not the super bad ones just enough to ruin my day. Good luck!!!
Hi, I havent checked in for awhile. I see that you live in Nebraska-I live in Colorado and I didn't go to Dr Oro just because I was referred to a Dr Turner at the Front Range Brain and Spine institute in Fort Collins which is very close to where I live. I have been extremely happy with him and he very much advocated for me to have the surgery. My main problem was headaches and he just said that since I had tried everything (which I had) that surgery was the next option. I still have minor ones but have not been in urgent care for 3 month!!! I have to say I am feeling much better but have had my scares with headaches coming back and his nurse and him have been there to support me. Let me know if I can help with anything else and best of luck!
Thanks for sharing and hope all is well at your side!
Just a quick note to say hi! Well lets hope the new DR. can shed some light on the situaton for you, keep me updated and i hope your doing well !
Just a quick note to say hi! How was your appt... on the 4th good news i hope!!
Just a quick note to say hi! Any news on the MRI,hopefully good news! well i just got call saying my appt' has been cancelled again! now it's may 4th,i have so many Q?? alls i know is i have type 1,i don;t know if i have a blockage or syrinx or anything else sooo angry urrrg!! i hope your doing well!!
Hey! Just dropping by to say hi and see how you're doing. How has everything been?
well thats good news in a way!,saying a prayer for you,hope your appt" goes well keep me updated.I'm not getting the greatest of sleep either and this weather doesn't help! i've had a good couple of days so far last week i was pretty yukk,but i'll take whatever good dys i can get lol.i have my sons basketball tourniment in niagra falls on the 1,2&3 i'm just praying i'll be haveing good days for that it seems i have a bad week then a couple of good days then back to bad,keeping my fingers crossed!hope you start to get better sleep&that you get good news!!! cary
Just a quick note to say hi!,just wondering how u r doing,and did u get any results from ur MRI ? hopefully good news!!
Just a quick note to say hi! that's great news hope everything goes well with your mri,let me know how it turns out for you!good luck on friday,cary
hey,i'm hanging in ther too!this weather dosen't help can't wait for warmer weather as well.i hope the insurance comp... comes through soon for u,my appt.. for march was changed to april nowi really want to here what he has to say,and ask some questions as well,like do i have a blockage,syrinx,or anything else?he hasn't said much for a dr that's the head of neurosurgery,lol.hoping u have better days,cary
Just a quick note to say hi! and see how your doing?
Just a quick note to say hi! hope u doing ok,me well me not so much
Just a quick note to say hi!,hope you those files from dr soon,my next app is march 2 hopefully fnd ome more answers!!well have a good day
Just a quick note to say hi! hope your feeling ok.
Well I didn't know it was your design but bravo!!! I think is so completely accurate so thank you for sharing it!!
Thank you for the note! It's good to hear from you. Still plugging away at school.
I hope you are well!
Just a quick note to say hi!,and thank you for answering my question,i have another appointment march 2 ,we'll see what the dr says then,selma also asked me if i had syrinx,csf blockage,or overcrowding.dr's never said so i'am going to ask him.how do you deal with some of your syptoms?i'am new to this so maybe your answers can help??mine sometimes last for a week.thanks again cary..
Hi there! I've been ok. I started school and have been insanely busy :(
Turns out I have thrombophilia. Who knew? lol
So now I have to be treated for blood clots. Looks like my little chiari is on the back burner for now...
How are you?
Just a quick note to say hi! Thanks for responding to my email. I am trying to find information on posterior fossa box surgery and surgeons that are doing it. I have a son, age 19, who has had 3 failed surgeries. I had read about the above surgery in an article I saw on the Conquer Chiari site. Do you know anything about it? Or doctors who perform it?
I am a 53 year old mom, married, with 2 sons, ages 19 and 22. My husband has 4 children, ages 15, 18, 22, and 25. My 19 year old was diagnosed with Chiari at age 16. His very first surgery turned into a mess and he's had problems since. He hasn't been able to attend school or work regularly since then. Do you have chiari? Thanks again for responding to my note.
Just a quick note to say hi! Thanks for helping me feel needed. Talking with others and solving their problems helps me feel some power against this nasty Chiari. Have a great one,
Hi! Thanks for the note! I was just diagnosed last week. I'm so new to this but I have read so much! I haven't even followed up yet with a neurosurgeon. It was found on a neck MRI. I had a brain MRI on Thursday and I'm guessing after I find a specialist I'll get the rest of the spine MRI. This is all just so crazy to have a answer to all of the weird things I feel!
My chiari is 6mm. I have a picture of it on my profile if you're curious!
Thank you again for the welcome. Everyone here has been very helpful!
Just a quick note to say hi!
Thanks Roy, I will have a look at that. Keep up the good work.