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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
12/10
I know it is easier said than done. But dont give up  for nothing, It took me 12 years, to get my accurate diagnosis.
Remeber this is your life, and if you are not happy with doctors, etc, then you move on to the next one..

Hope you are ok, im always here if you need me, even for a vent.lol
Nicola.xx
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969042 tn?1259067775
06/10
Just a quick note to say hi! thanks for the note. How are you? Please write and tell me what's going on in your life. Me - I've been very depressed and physically ill. I started taking medicine and I'm told to wait for the good effects to kick in. take care and please write soon.
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969042 tn?1259067775
06/10
Just a quick note to say hi! How are you? Sorry not to have written so long. Been very ill.
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681148 tn?1437661591
06/10
Thank you.  It helps when someone else understands.  I know the stress I've been experiencing is aggravating all of my symptoms.
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681148 tn?1437661591
06/10
Thank you.  The fibro and migraines are really flaring right now.  I overdid it yesterday.  Not entirely by choice, though.  
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910419 tn?1289483727
03/10
My vision is completely normal again, which is VERY nice. It was an type of muscle relaxant as some of my meds have a side effect of neck muscle spasms. However, I'm now off that as my doc was quite alarmed (rightly) at my reaction.
Sorry to hear about your stroke. I'm glad that they say that you'll regain everything.

~Dame
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Avatar universal
01/10
Thank you for the warm welcome. :)
I'm relatively new here. I'm mostly 'lurking' at the moment but a number of the groups seem very promising.
See you on the boards. :)
TSX
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739070 tn?1338603402
01/10
You're in my thoughts all the time, but especially today. I'm sorry to hear of the Mayo visit and the upcoming EEG.   I had to do my testing for vertigo with no meds so I can truly relate.


I am sending warm comforting hugs and thoughts your way.

Ren
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1171269 tn?1403331992
01/10
Thank you for the warm welcome and I definitely agree, sometimes just having someone to listen helps.  Take Care.  'Head' Mistress x
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1167071 tn?1264245855
01/10
Hi Tracy, Thank you for your warm welcome and kind words of support - I'm looking forward to contributing to discussions, Sharon
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Avatar universal
01/10
Just a quick note to say hi!
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327385 tn?1378360731
01/10
Just a quick note to say hi! i was just wondering if you have had an eeg before? i have never heard of having them so close together. i refused to have mine. i know every time i have an eeg , they put me in seizures. my seizures have gotten so much harder on me. was you told not to take your meds and sit up all night and fast before your test? i cant go 1 day without my dilantin , i can feel it for real. my lips tur blue and im having stroke symptoms during them now. i know i should have it done . im scared because i was left alone in the room and woke up after alone. the worst thing was the neuro wasent there to help. my neuro has told me i can die during mine . i would have mine if it was at the mayo tho. my kids are loving the 2inc snow we got. i agree with the sunglasses lol. take care
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327385 tn?1378360731
01/10
Thank you for everything! i am doing good as far as my seizures go. im out of my migraine meds and waiting for my doc to call them in. i havent had my meds for a couple days and my head is busting. i think my cluster migraines comming on :( .  how have you been feeling ? how much snow are you getting and have so far? our snow storm isent as bad as they thought it would be. we havent even got a inch yet lol.
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1056589 tn?1273747102
01/10
While the snow is really pretty to look at.I do wish it would stop! LOL We are suppose to get about 6 inches but I already measured 4 1/2 on the deck. It is not letting up at all.May have to break out the snow mobile and skies..LOL
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1088430 tn?1259159773
01/10
I'm doing pretty good...thanks for asking. My neur. increased an RX I've been on (3rd time for increase,ha) and gave me a new one in addition. The new one's to see if I can actually sleep in my bed all week w/o 1-2 nights trying to sleep sitting up in my popazon chair (ha). We also spoke about my contained road rage for driving at night w/dumb headlights & while he said nothing in a bottle would totally take it away, that's why the increased RX. He's very nice, he's Indian but talks with a Californian surfer accent instead of foreign (ha). Not what you xpect from his looks, he just have grown up here. I'm ordering some of those anti glare glasses next wk after eye exam; thanks for the tip (:
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1140836 tn?1263571647
01/10
Just a quick note to say hi!
works for me! Vent away! :) Today I was finally headache free! ALL DAY!! what a fabulous feeling!
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472889 tn?1272677766
12/09
. Thank you for the warm hello. I appreciate it. I still have questions to ask, but am entering this forum slowly. How long have you had migraines? I am now 57, but was diagnosed at about 25. My migraines have gotten worse over the past 20 years with strange symptoms. It sure is hard to find a neurologist who really understands migraines. Wishing you a peaceful and pain-free 2010!

Karla
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1088430 tn?1259159773
12/09
It sounds like you truly have a rough way to go with things, I hope that your seizers get better soon. Sounds scary to deal with that, I'm glad you have such great med help as the Mayo. Pls let me know if they get better after you see your doc next. Not to sound mushy (which I am-ha) I think it's very kind of you to be so involved in supporting all of us here when you yourself is going through so much...thank you for that. I'm a firm believer in how the good we put out always comes back home to us later on. Keep me postecd (:
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1140836 tn?1263571647
12/09
Thank you! I am sure I will be venting a lot! lol
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1088430 tn?1259159773
12/09
Just a quick note to say hi! I wanted to see how your doing...Do you still have lots of cruddy (although I'm sure pretty) snow to deal with driving? Oh, and how's your anti glare glasses working for you?
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327385 tn?1378360731
12/09
Thank you for everything! i do know how confusing seizures are and how scared you feel at times. i have been living with this for 25+yrs and i still get scared and worry .the bloody metal taste comes from biteing my tounge and jaw. i had my back teeth filled down to help .my fear is starting new meds and waiting to see if they work. i have all the trust in my neuro she was the one that found my pituitary tumor and i stayed controled while i seen her.i was told a pin stroke was like tia i worry about that because of the crainotomy i had 3yrs ago.i just refuse to have the eeg because my neuro told me my seizures are dangerious i could die during 1. i havent drove much since my last seizure. i get the out of order for 5hrs to 24hrs.im taking clonopin so i feel better.talk soon
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327385 tn?1378360731
12/09
Happy Holidays! i hope you feel better. i do understand the missing the whole day. my doctor said im to stressed and that i had a pin stroke before the seizure. im tired of going to doctors that just dont understand my seizures. i am going back to my (good) neuro she has came back to town. i got upset with my doctor he wanted to take my drivers license and thats why i stay away from them.i got my warning but the seizure came to fast. have you learnt any warnings yet? do you get that awful bloody metal taste in your mouth? i have been on dilantin for 25+yrs so my body is getting use to it now. my seizures have allways been controled till now and im getting worried. my doctor wants me to have an eeg but im not having that test.i hope you have a great christmas and seizure free.
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739070 tn?1338603402
12/09
Happy Holidays!  Sending wishes of peace and comfort this season!

Ren
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1056589 tn?1273747102
12/09
Happy Holidays!
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768044 tn?1294223436
12/09
Happy Holidays!
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193137 tn?1367880063
12/09
Happy Holidays and have a wonderful 2010!
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327385 tn?1378360731
12/09
how have you been ? for the first time my seizures arent controlled. i had another one saturday that makes 2 in about 5 weeks. my husband watched this one and it was very bad.i had my warning but had the seizure just as fast.this one my face drooped and my lips turned blue.i wasent took to the er i just woke up at home 4hrs later. im a little worried i may have had a pin stroke or something. im going to the doctor today. i have been feeling like im tied in knots in so stressed out i think thats why im having them.how are you doing on your meds? are you having many side effects and do they make you feel weired? i have slept most of my weekend and im so sore with a 9+ migraine. i am hoping to get something to calm my nerves. i hope you are doing good. have a good one today!!
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333672 tn?1273792789
12/09
Glad to hear the Keppra is helping. Will they be adjusting the dose or otherwise trying to make it work better? It's amazing how good it feels to get even part of your life back. I updated my progress on my journal today and am still feeling so much better.
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327385 tn?1378360731
12/09
how have you been feeling? i had my dilantin level checked again and it was good . i know my stress is going to start soon. with my level being good that proves my body is getting use to the dilantin. my level was good enuff to stop my seizure is why i just had the stiring and numb feeling. i had tryed different meds before so my doctor is waiting for my records from my old neuro to start me on different meds so i wont try the same meds as i took before. i havent had any seizures or numbness sence. i am tired with a migraine . my littlest has strep and running a high fever so its wearing me down. do you have your shopping / wrapping done? i hope you are feeling better and have a good one.
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551343 tn?1506830518
12/09
Just a quick note to say hi!

Hi rudy i found it this morning Lucy my poochie just gave me a big cuddle when I needed it LOL, she is so cute. Blimey wouldnt someone make a lot of money if they really did find a way to boost our tiredness LOL. Big hugs Mariaxxxx
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739070 tn?1338603402
12/09
Saw your mood post and wanted to send you a hug. So sorry you missed your son's wrestling match. I hate missing out on my kids activities too. Makes me sad.

I hope things get better and you can attend all the activities you care to.

Hugs,
Ren
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327385 tn?1378360731
12/09
hey how have you been? have you got your meds on track ? i hope they are helping you and no bad side effects. i havent talked to you in awhile. i am on the higest dose of dilantin and my body is getting use to the meds . i may have to start trying different meds till i find one to control them. oh i just hate the thought of it. i could feel one comming on sat and had the staring and the in and out feeling but i dident sez. i am worried on trying diff meds cause i had a seizure on generic dilantin within a couple days. im goin to the doctor today to see if my dilantin level is low. i hope you are feeling and doind good. let me know how your doing and i hope you have a great day.
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