Just a quick note to say hi! Cindy, I wanted to let you know that I am in remission but have had dental problems all due to interferon so now, and have been off the medicine since 9/18/09 as dr sent email saying that she wants to make sure that its gone so on 3/21/11 I have to repeat it again. I have been having problems white blood count (L) and that RDW (H) and my Basophils are low as well. ??? I will ask the dr when I go in on the 21st as I really want to know the answer to this as well. Take care dear. Pam
I did a lot of recent research on this. They have tried to relate it to HCV and been unable to. I could not relate it to TX either because I had a heart arrhythmia (racing heartbeat) episode before I was diagnosed. Classic hyperparathyroid symptom, along with artery problems, high blood pressure, high calcium, high PTH, sleep probs due to frequent urination. That early arrhythmia lead to my HCV diagnosis. Checked heart out & it is perfect. Those palpitation episodes have become more frequent lately and my blood pressure is higher for the first time in my life. Treatment is scanning throat with nuclear test to show a malfunctioning parathyroid. Remove it; you have 4 in total so no loss. Fixes everything 95% of time. Can't believe I'd be excited by surgery but I'd like to sleep.
I am pretty close to finding out that I have a parathyroid problem (tested today but have not got radiologist's comments yet) and can track it back to pre-TX by when the symptoms appeared. Having a revelation that this is another damned hidden disease that may be one of the reasons that so many people finish TX and still feel lousy. Please do check out the parathyroid angle.
'TX drugs suck' is not a strong enough statement. I almost hope that parathyroid is your issue. At least it's fixable and the damage is reversible. I don't recall signing on for allt his craziness, though guess I was scared enough at the time to do it even if I'd known. Good luck!
Have you checked out parathyroid hormone? I'll never know for sure but think TX wrecked my parathyroid function. Found it after a bad bone scan. Causes excess calcium, which causes atherosclerosis, another hardening of the arteries disease. Good luck at cardiologist.
Thanks! I will post when I get the results unless it comes back that I am pregnant, in which case you won't hear from me!
Way to go! I get blood drawn tomorrow for the 3 month test. See you in SVR 'ville. :-)
Thank you for your heads up as I go to dx for check up as I am on Pegasys/Riba and was gonna see if they would add it, cause right now I am sick all the time without meds. I have been trying to keep up with Mail for Cheer but sometimes that is a little much. God has plans that neither of us know. Glad that you are down to the end of tx as I know that you will be glad. I have stage 3 grade 4 as they had just did a bx 4 mos ago. A sonagram was done as well don't ask why casue I was having a lot of pain on the R side. I will ask about the Alinia and then get back to you as to what they say. I love those dr's down there as they care about you. I wish that I would have went there the first time. God Bless, take care, Pam
Thank you for everything! As I needed to hear that and I go in on the 18th of this month as I am so tired of being sick. I am to the point that I will try anything and I think that if things didn't change when I go in then I have that option. Are you over tx? I know there at one time you had a hard time and that is just what is happening to me right now. Keep in touch as I am still trying to keep up with all the Mail for Cheer guys as I sent about 55 cards in the mail today. Take care, God bless. Pam
Thanks. It's not much different w/the VA. In fact, my chances are probably like one in a million, but I'm going to fight the fight anyway. I can use every bit of info I can get my hands on, so I'll be researching. I have submitted to them some actual info put out by the VA itself, and they deny its credibility,. Its been proven though, over the last couple of weeks that the gov. actually did put out the info about the airjet guns, but they retracted it-no excuse. It's in print and I submitted it. Thanks for your help. Not holding my breath though.....
You will be in my thoughts Kitty as you complete this battle. Five more months can seem like a life time... however you will soon look back on this chapter of your life as another accomplishment. Take very good care of yourself, lady.
Great advice you gave Nannerkins and Bambie! Hope you're feeling well!
thank you for the tip. I will look into it.
hi! Cindy didn't know that you lived here in Houston. Yeah they told me if I respond then they have VX-950 that that are working on experimetal so I go in on the 22nd & they will access it from there, at least there not just throwing up there hands & saying that nothing else can be done when I know that that is not true. Me & another girl we have the same grade liver damage so its a wait & see . If we both have to have a transplant we talked at least we are in the best hospital & dr treating us. We have to place this in Gods hands. Are you still under treatment? Our group has been praying for you as they ask the other night how you where doing? I will bring up this Alinia as I think that is the other drug that they were talking about. You take care, always in prayers & thoughts. Pam
Just a quick note to say hi! well going through tx again as this time I am on pegysus as the St Lukes Liver/ and hepatologist said that I should have been on it this last time. I told that look I am the patient and I just do what all these drs have said and so far nothing has been right. Maybe this time Cindy as I have not forgotten you cause we have been praying for you. Don't have a way to send cards as so many have asked. I haven't heard from you but wishing the best. Hugs from a friend though maybe to help you bet through all this. I have a full mailbox ever since Mail For Cheer put me back on the list. God will take care of everything. Pam
You are in my thoughts and prayers. I am really worried as I haven't heard from you as to how you are doing. Want you to know that you are in my prayers. Pam
You're in my thoughts all the time, but especially today. Hope that everything is going fine with you as I never hear from you. Take care, as you are in my prayers. Pam
You are in my thoughts and prayers. Thinking of you always, and hoping that everything is going O.K.