Hi Maritza ~ I haven't been on MedHelp in ages. Tonight I just checked in and saw your message from back in October...I didn't realize it had been that long. Dr. Adams also wondered if I have a CFS leak. How did you make out with the blood patch? I had one also. It didn't help, but Dr. Adams had said that didn't necessarily mean I wasn't leaking fluid. The base of my spine is covered with very large cysts, which developed over the previous year.
I believe I told you I was going to see Dr. Rey.
I will be going back to see Dr. Adams on the 16th. You were telling me that he is managing your POTS. Is he helping with that?
When you get a chance, let me know about your blood patch and if you have a CFS leak.
I appreciate your note...even if it took me ten months to see it :)
Hi Maritza - Just to let you know I did see Dr. Chizner several months ago. I think I saw a post of yours that sounds like he gave you same advice as he gave me. He told me to drink H2, to replace water. Also, he put me on a low dose beta blocker, twice a day. I can't say I feel much better, but it's hard to say. It seems like every day is different anyway.
This coming Tuesday, I have an appt. with Dr. Adams (thanks to you!). I really look forward to seeing a neuro that understands POTS. I really need a specialist in both CNS & ANS.
How are you feeling?
Thanks again for the tips!
Thank you so much for getting back to me. It sounds like Dr. Adams is a great guy ~ and is familiar with POTS. I looked up the medication he prescribed, and saw that it is prescribed for Myesthenia Gravis. Do you have that? What particular symptoms does this medication help you with? In looking at your profile, I see we have so much in common. I am 53, have diabetes and, I think, a few other things you mention. Also, I am overweight...more than you! I was thinking of joining Jenny Craig for their diabetes program. I live in the north edge of Coral Springs. At this time, our house is on the market and it looks like we will probably be moving to Parkland. Where do you live?
Who do you see to help with your diabetes?
Thanks again for your reply!
Hi, you previously wrote a post, saying that you were scheduled to see a UM neuro,, Dr. David Adams. I am curious how you made out and what you think of him. Also, you said that you have seen Dr. Chizner. FINALLY, I just scheduled an appt to see him in three weeks. It seems that my symptoms are getting worse and I am going off of my "doctor boycott" and getting back on track again. Thank you for your help - it's wonderful to think there might actually be a doctor that can help, or at least understands POTS.
Welcome to the Dysautonomia community! :)