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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
05/13
Thanks for that.  Much appreciated.
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Avatar universal
05/12
Dear Bali

i was test 1st time for this test on 05/05/12 and i got report on 12/5/12. i dnt have any info abt viral load. now i have one dose of the pegasys 180. wht do u thnk should i go for PCR qualitative? on which date ? engr.***@****

i have to go plz mail me i will be very thankful to you.
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2062453 tn?1350336542
04/12
Hi Bali. Good suggestion for the uric acid test. I spoke to my nurse and she ordered a test for this week and one for next week. Cheers, GB
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Avatar universal
09/11
why not smoke while on chemo??? why would u say that? obviously getting hep c was a great idea; awesome and constructive advice thanks!
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1747881 tn?1546179478
08/11
Good info thanks, I went ahead and started new thread so I would get more feedback.

Keith
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Avatar universal
08/11
Thank you for everything!
I am new in treatment and in the forum. Some of my posts can be wrongly understood. Anyway i have benefitted much from your inputs. I hope to have your continued support in my treatment. Can you help me in any way? BTW, how are you? After 60 weeks of treatment you must have SVR. Thanks and God bless! Stephen.
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Avatar universal
07/11
Just a quick note to say hi!
Hi!  Thank you for your answer.  What letter?
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Avatar universal
03/11
Just a quick note to say hi!
can you tell me about anti fibroti treatment please
thanks
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Avatar universal
07/10
Hi Bali05,
I don't go to Germany often. I was planning a UK trip so wondering about different places,..
If FS is available in NYC, it would be a more viable option!  Can you post the link re: NYC.?
Thanks,
mk
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Avatar universal
07/10
Thank you for the Dusseldorf Univ link.
-mk
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1225178 tn?1318984204
06/10
Just a quick note to say hi!
Yes, I'm glad I did the research too. My doctor actually told me that people who start tx with a good understanding of what to expect tend to have better results, which is especially important for us genotype 1s. I am discovering new sx as time goes by that I keep thinking are because I caught something, and then I find out ...no... its just another sx to add to the list. I guess once you get used to one, adding another one isn't as bad as if they all came at once. I can still work, so that's handy. Do you work or have any kids at home? My kids have gone to my sister's house for the summer, so that is helping a lot.
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1225178 tn?1318984204
06/10
Just a quick note to say hi!

Haven't seen many of your posts in a while. Did you ever start tx? I remember you had a lot of uncertainty a while back.

I went ahead and started... only 41 shots to go. Thought I was going anemic after week 3 but then my bone marrow kicked in and kept my numbers from dropping any more.

It isn't fun, but that dragon is NOT welcome inside of me.
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Avatar universal
04/10
Hi Bali,

I was only in Germany for 24 hours so I didn't have to bring the interferon, only the ribavirin and study drug.  The treatment is going fine, just a little moody sometimes.  I have a prescription for lexapro, but I'm holding off on taking it unless I have to.  Did you start treatment too?

Vik
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476246 tn?1418874514
04/10
Good luck with your treatment! Marcia
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Avatar universal
04/10
I haven't been on the website hardly at all because the treatment makes me grumpy.  I start week 17 tomorrow.  I went for a visit to Germany which cheered me up a little.  I just got back from Munich yesterday.
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717272 tn?1277594380
03/10
What is a right to know state?  I am so frustrated with the attitude of medical people here.  Some give copies, others have to be talked into it.  I don't think we have Quest here, only Omega.
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717272 tn?1277594380
03/10
Don't think I could find a 'friendly' like that but glad you did.  Thanks for info.
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717272 tn?1277594380
03/10
Don't know if you are still reading the forum, but had a question for you.  How did you manage to get all of the labwork that you have had?  I think I could skip most contact with doctors if I I could do my own labs or had access to whatever I needed.  How did you manage it?
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717272 tn?1277594380
02/10
Stop reading the forum.  You will never run into a greater bunch of fear-mongers.  Your AST/ALT's do not justify treating the disease or having a biopsy.  Wait for the triple therapy and treat for a shortened time.  I laughed when you said you wished you could run your own labs.  My life would be complete if that were the case.  Outside of N. America you can buy whatever drug you need.  If I could run my own labs I'd be set for life.
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717272 tn?1277594380
02/10
You mentioned trying to decide if you should TX or not.  I don't think it's that hard of a decision.  If you have had a biopsy and you are stage 3, you should treat.  If you are stage 2 and your AST/ALT is high, you are currently taking on damage and should seriously consider TX.  If you have not done a biopsy and your AST/ALT are relatively close to normal, don't.  Wait for the triple therapy to be approved.  People make a fuss about taking on fibrosis with normal ALT/AST but it's actually a rare occurrence.  Don't be pushed into 48 weeks without a reason.  Just my 2 cents.
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Avatar universal
02/10
maybe they took more readings and I just didn't know it.  if you could find out more details, that would be great.
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Avatar universal
02/10
When I made the appointment, the only thing they had available with Dr. Dieterich was for 5 or 6 weeks later.  They offered me a sooner appointment with another doctor but I insisted on Dr, D because I knew he was friends with Dr. J.  I made the appointment at the beginning of Jan and went in the middle of Feb.
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Avatar universal
02/10
I was wondering about something.  The Fibroscan I had was very quick.  It only took a couple of minutes.  They only took a reading from one spot on the lower right side.  I think you said that in Germany they take several readings from different angles.  If that is the case, maybe I'll get another test in Germany.  This month my company starts flights non-stop to Munich.  I wonder if I could get a Fibroscan in Munich or in Regensburg where all my cousins are.

Vik
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Avatar universal
02/10
I didn't pay anything.  I think my insurance paid it all, but it was only 2 weeks ago that I had it done.  Maybe I'll get a bill for the $25 deductable.  Call 212-241-4299 and ask for Dr. D's secretary, Marisa and tell her you want to have a Fibroscan.
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Avatar universal
02/10
Hi Bali,
In answer to your question, I got my Fibroscan from Dr. Dieterich at Mt Sinai. But I  thought that you knew that.  He has the only Fibroscan in NYC.
As for the MRE, I thought my insurance was going to pay but I could be wrong.  I cancelled my appointment with them after I did the Fibroscan with Dr. D.
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Avatar universal
12/09
You're right.  We don't fly to Cologne anymore
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Avatar universal
12/09
Ingolstadt (spelling)
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Avatar universal
12/09
I mean Dr Jacobson.  I'm also from Germany, born in Ingostadt, Bayern where they make the Audi.  I found a Klink in Berlin.  I'll call them next week for more info.  Thanks
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Avatar universal
12/09
I work for Continental.  I think we are being treated at the same hospital because you said you talked to Dr Jackobsen.  He is in charge of the study I am participating in at Weill Cornell.  I started the phase IIb trial of TMC435 on Dec 15.  
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Avatar universal
12/09
I am a flight attendant and we usually only get 24 hours to rest in each city. To go to Duesseldorf, I would have to take a train  from Cologne.  But if that is my only choice, I'll do it.
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Avatar universal
12/09
Duesseldorf  is a little out of my way.  I also go to Cologne and starting in March, to Munich
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Avatar universal
12/09
Hi Bali,
I noticed that in one of your comments you referred to Fibroscans in Germany.  I go to Germany all the time, but I don't know where to get a Fibroscan. If you know of a place in Berlin, Mainz, Hamburg or Frankfurt, I would appreciated it very much.
Thanks!
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