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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
572651 tn?1531002957
08/09
check out this link

http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/1319

MS and Statin use............  
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572651 tn?1531002957
08/09
statins and ALS?  that's a scarey connect-the-dot picture.  I'm no fan of statins and tell everyone of the health problems they can cause, based on my own lousy experience.  If you go to the heart board with this you will get Grace and the others going on the research if you want to know more.  I wish you were doing better - I still think Mayo missed the mark with your dx.  But I'm no doctor....... L
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Avatar universal
06/09
I'm so happy to hear you are feeling better!! Hope the B-12 vitamins continue to helping you.
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634733 tn?1316629592
06/09
Just a quick note to say hi! Just checking in to say hello, was thinking of you today as it is 5 weeks tomorrow since my knee op and I am still not back at work. It swells if I try to do too much or if I rest too long - did you have this? Sending (((hugs))) Pat x
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634733 tn?1316629592
05/09
Just a quick note to say hi! Just catching up and letting you know that the arthroscopy went ok, lots of tears in the cartilage which they trimmed but also lots of high grade osteoarthritis so it will only last a while. Had a scare with a nasty reaction to Codeine and ended up in A&E after only taking 30mg so can't go near that drug for pain in the future. Oherwise just rest and physio at the moment - how are you doing? Pat x
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634733 tn?1316629592
04/09
Thank you for everything! My surgey is booked for 1st May as long as I am fit enough. Part of the process will be to assess the level of OA and give me a prognosis. Gee getting old is great eh? Sounds more and more like we have stuff in common. They have promised to make my knee more comfortable but we will see - I am not expecting miracles. So sorry you have been poorly, lets hope you are on the mend now. (((hugs))) Pat
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634733 tn?1316629592
04/09
Thank you for everything! I'm ok thank you, trying hard to get through each working day, I work full time and it is a real struggle at the moment with the ms stuff and a painful knee. Had a spine mri yesterday but won't know the results for a while. How are you? Pat x
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634733 tn?1316629592
04/09
Just a quick note to say hi! Thanks Cynde much appreciated seems we have much in common so will speak soon.Pat x
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634733 tn?1316629592
04/09
Thank you for everything! Thanks so much for your reply on the arthroscopy thats exactly the same op I am having so i really appreciate your comments. I have the same problem with meniscus too. Thanks again, seems we have a lot in common ((hugs)) Pat
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155701 tn?1230050701
03/09
Hi Cynde,
I haven't found out yet about my weakness.  I know it must stem from my spine (probably my neck), but since I have crappy insurance, I'm hesitant to see a neurologist or rheumatologist only because I know that the tests they'll have to run will be expensive.  I go back to my primary on March 20, so I'll see what she recommends.  I'll let you know!  Have you been to any specialists about yours?
Maggie
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572651 tn?1531002957
02/09
Cynde, I know you were/are in Arizona at Mayo.  how did the week end up?  Please check in and share whatever news you have with all of us here.  Heartfelt best, Laura
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620877 tn?1282767697
02/09
Hi Cynde,

Just a quick note to wish you good luck in AZ.  Let me know how it goes!

Chrisy
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620877 tn?1282767697
02/09
I am not dx'd.  Most of my symptoms have progressed over the last year & a half.  I had some burning/tingling in my feet that began 3 years ago, and my left hip problem began about 4 years ago so I am not sure if those were actually the beginning or what.  What I meant about asking questions, was that I thought of things either before, during or after the trip that I didn't write down, so I forgot them & never got to ask them.  I realized when I got home & was going through my records & such that I never asked about the UBO on my Brain MRI, and I didn't give him the balance test results that were abnormal...
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620877 tn?1282767697
02/09
Good for you, Cynde that you are getting everything in order.  It will help you.  I would hope that they would try to find out whatever is wrong - MS or not!  Something that I wish I would have done while I was there was to write down thoughts, or questions as soon as I thought of them.  Often times I wouldn't have something to write on or a pen and I would forget.  I remembered a lot of things I wanted to ask....once I got home!  :(   I am currently experiencing some tingling, numbness, vertigo and fatigue and I think I may have had my first experience today with optic neuritis.  So so far the supplements I have been taking haven't done much.  Time will tell.

Chrisy
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620877 tn?1282767697
02/09
Hi Cynde,
How are you doing?  When do you leave for AZ?

Chrisy
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Avatar universal
02/09
He wants to redo the urodynamic testing, so I need to go back down in 2 weeks.

All in all it was a great visit. Dr. Carter took his time with me, and answered all of our questions without making us feel rushed.  We did stay at the Courtyard, which actually is kind of nice. Don't know if you made that decision yet.
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Avatar universal
02/09
Hi Cynde -

Just got back last night from AZ.  Dr. Carter is wonderful! He was an hour late for my appt., but I didn't mind because that just told me he was spending time with his patients!  When I got in, he was very thorough.  He looked through all of the reports that I brought with me.  BTW, I brought both the MRI films and the MRI's on disk, and he apparently prefers the actual films - I know you were worried about getting them on disk.  Then he conducted his own neuro tests - banging this, and touching that.  He concurred with the MS dx from the neuro here in Vegas, and felt the testing had been very thorough.  He did not feel I needed any additional testing, but he referred me to the urologist for the bladder issues.  I got into the uro yesterday am.
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572651 tn?1531002957
01/09
Hi C, thanks for the comments on my journal.  I am trying to be as transparent as possible with everything that happens to me in the hopes that it will help others in one way or another.  I'm hoping your trip to Mayo AZ provides you with some answers.  In the meantime, take care of yourself. You know the importance of being kind to yourself first.  - L
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620877 tn?1282767697
01/09
Cynde,
It is christina_smith8

@

hotmail   dot   com.

Hopefully this gets through the sensors...  :)

Chrisy
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620877 tn?1282767697
01/09
Cynde,
You can certainly email me:  

christina_smith8***@****

Chrisy
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620877 tn?1282767697
01/09
Thanks Cynde.  It is good to be home.  I am going to post a review (as long as I get the okay from Quix) about my trip to the Mayo clinic - just so that those of you who are going there soon can know what to expect.  I, unfortunately did not come away with a diagnosis.  Not that I want MS - or any other neurological disease - but an answer as to why I am having the symptoms I have been experiencing for the last 1 1/2 years would be nice.  Still, the visit was worthwhile & I was very impressed with the clinic.

Be well & feel free to ask any questions you may have regarding the clinic - I am happy to help if I can!  :)

Chrisy
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494672 tn?1254156272
01/09
Thanks for the note & the comment about my family!  The kids are such a blessing that is for sure.  We belong to a big church but they only had the one performance for Christmas - it was in front of a couple thousand people  :)  My kids are performers - even my shy Alex loved getting on stage which was a shock to us.  We do have a group for mom's but I have not gone since I was pregnant with Alex.  We have started different play groups where we support each other & that is an awesome support group!

Have a great day & enjoy gardening the next time it is nice enough to do so  :)

Janette
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620877 tn?1282767697
01/09
Hi Cynde,
I took a look at the Gainey Suites hotel - and The Courtyard Marriott at Mayo is not in the same league!  If you are used to staying in hotels like the Gainey suites, the Courtyard Marriott would be a disappointment.  As I said, it is a fine hotel, just not high end or luxurious.  

If you stay at the Gainey Suites hotel - you would be about 20 minutes from the Mayo clinic.  Personally, I would have preferred to stay in a nicer hotel, but I had to board 2 dogs and a cat too!  :)   If you don't mind the expense, stay somewhere nice!  :)

Chrisy
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572651 tn?1531002957
01/09
C- I have heard less than good things about Mayo in MN and Cleveland Clinic.  But I don't remember hearing a single negative about the Mayo group in AZ.  I think the big complaint about MN and CC was they felt a sense of entitlement from the doctors and not a feeling of compassion or caring.  This is such a good thing - perhaps you will finally get a dx ... MS or whatever is going on, you deserve to know.  my best, L
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572651 tn?1531002957
01/09
I'm glad you're getting such great info about Mayo/AZ.  Good luck and keep me posted. Laura
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620877 tn?1282767697
01/09
Cynde,
Still here at the Mayo Clinic - will meet with the Neurologist on Friday to go over all of the tests.  I will definitely post my experience when I am done here.  :)

Thank you for your kind thoughts!

Stay well,
Chrisy
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486038 tn?1300066967
11/08
Just jumped on the forum for a few minutes and read your post. I saw that Quix will be back on this week-end to handle your questions, but I wanted to let you know that while you are afraid, you must know that you are never alone, and that we are all here to support you. You may have MS, but you must not let MS have you, Do you understand what I'm trying to say? Hang in there, and if you need a friend to talk to, feel free to PM me to chat, rant, or just talk about your day. I'm here.
~Sunnytoday~
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601370 tn?1221408885
11/08
Just a quick note to say hi! ty for ur post, sadly i have now come to the conclusion i think they have misdiagnoised, the injection was supposed to make a huge difference within 2-3 days, it has been a week now and things are no better, infact movement in my hand has become worse. the doctor did say the injection would help if it truely was psoriatic arthritis, so i am assuming its not that now. my neck aches non stop and has done since aug, i just want to find out whats wrong with me and get a rememdy to enable me to lead a normal life which at the moment i am strugging to do. anyway hope u are well and ty again for ur post
vicky
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494672 tn?1254156272
10/08
Sending more prayers your way!  I lost my mom 16 years ago & still remember the fatigue I had during that time after she passed!  If you ever want to chat with someone - please drop me a not or message.  I am on the boards or at my e-mail a lot during the day so I will see it & respond right away!

Take care of you!

Janette
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195469 tn?1388326488
10/08
Cynde..I am SO SORRY to hear about the loss of your precious daddy.  I just don't know what to say to comfort you, except that you are in my thoughts and prayers.  I truly understand as I lost my daddy in January.,  I share in your pain of losing your father.  Again, I am so sorry.  Heather - Earth Mother
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572651 tn?1531002957
10/08
Cynde, I will keep you and your family in my thoughts - I hope your absence isn't long but it will certainly be understandable.  Enjoy these final days with your dad and make some meaningful memories to hold close after he is gone.

My heartfelt best to you and your parents,
Laura
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486038 tn?1300066967
10/08
Hi there? Are you in the US? Just wondering where UCSF is, and if you were able to get anywhere near the hosp. I went to, I love my doc. Have a wonderful day!
~Sunnytoday~
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