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6 years in neurological limbo and getting progressively worse...surreal to be living like this undiagnosed!! Jun 06 - 0
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5 years in neurological limbo and getting progressively worse...surreal to be living like this undiagnosed!! 05/19 - 1
973741 tn?1342342773
specialmom That's terrible. So long!  Post on the forum what is going on.  I'd like to read an update.  
05/19
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3 years of neurological symptoms, progressively getting worse..STILL in limbo. 06/17 - 1
5265383 tn?1483808356
aspen2 So very frustrating. (((hugs)))
06/17
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The mystery continues...is it a syrinx or not...scheduled my 3rd C spine within 6 months for clarification...crazy!! 11/16 - 0
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Limbo Land continues...repeat C spine MRI in October to determine if what they saw in June on the MRI was an artifact, a syrinx, or a lesion.  I can not believe the craziness of this all! 07/16 - 2
11079760 tn?1483386130
cjtmn I know its frustrating, but I'm so glad you are having another MRI done. Praying they find something that can be treated!
07/16
5265383 tn?1483808356
aspen2 There is nothing believable about being in limbo.  So sorry :( ... (((Hugs))).
07/16
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This fatigue...crushing, debilitating...I wish it would end! 05/16 - 2
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essdipity I hope it does end soon. I'm just coming out of an episode that lasted almost a month. Far from energetic, but no longer 'hit by a bus' tired. Good luck to you.
05/16
11079760 tn?1483386130
cjtmn I am so sorry - I imagine the humidity is NOT helping. When will you see the results of your next MRI? Thinking of you.
05/16
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Anxiously awaiting radiology report via the mail...I think they sent it via a carrier pigeon...fingers crossed it gets here soon and, well...I don't know what I'm hoping it will say. =0 05/16 - 0
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Seeing the 8th (goodness!)  neurologist tomorrow, hoping she can finally give me answers! 05/16 - 6
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15288417 tn?1446902183
TLC1104 Hi, fingers crossed this will be it for you!  Take care. Tania.
05/16
11079760 tn?1483386130
cjtmn Fingers and toes are crossed for a GOOD appointment finally!!! Let us know how it goes. Prayers & good thoughts all coming your way.
05/16
9745005 tn?1410044366
4happygnomes Thanks!  It went ok... having another spine MRI, more blood work (which came back within normal range) and a nerve conduction test on left leg and arm...the search for answers continues!
05/16
11079760 tn?1483386130
cjtmn I'm glad they are continuing to search for answers for you. I know the testing is exhausting. Hang in there.
05/16
15288417 tn?1446902183
TLC1104 Glad they are getting things done for you. Hoping it's not a long wait for those answers for you.  Fingers are still crossed for you. :)
05/16
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GAH....this left leg pain, happening more often and lasting longer...I just want to cut. it. off!!  Really hoping the LDN starts working soon!! 03/16 - 1
5265383 tn?1483808356
aspen2 It doesn't work for everyone, and it does take a while to kick in.  My neuropathic pain was horrible at night -- initially the LDN kept the pain at bay for short periods which then grew longer and longer.  I was dubious, so very happy it worked at all.
03/16
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Due to  insurance changes, I will now need to find a new neurologist...this will be my 8th!!!!  Not looking forward to starting all over and certainly this must be some kind of record for most neurologists one person has seen?!  Ugh! 03/16 - 3
11079760 tn?1483386130
cjtmn Oh crud, Karen! That stinks. :(
03/16
9745005 tn?1410044366
4happygnomes I know!  And I'm being forced to use Park Nicollet, not exactly known for their neurology clinics!  They only allow 15 minutes for their regular doctor appointments..I can only imagine how rushed the neuro ones will be!
03/16
5265383 tn?1483808356
aspen2 :( ... I would think neurology appointments would be longer, however?  Wouldn't they?  15 minutes is de rigeur in Ontario for a gp, but most specialist appointments (at least the first one) are much longer.
03/16
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