"Your employer cannot look at your medical records without your consent. So don't worry about that. There is a federal law that protects you (HIPPA) Health Insurance Portability and Privacy Act. It started as a way to protect you from..."
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About Me: Female, 68, CA, member since Sep 2008
a nurse with an attitude.
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May 03, 2009
"Yes, yes, yes. Everything you say sounds so familiar. There have been days when I don't feel up to going to work. I have called in sick when I was actually depressed. So I totally understand where you are. My Neuro changed my meds a..."
May 03, 2009
"Thanks for the support. I am finally back to baseline. Next year I will be in better shape.
I am still a bit uncomfortable with my diagnosis, I have tried to keep it private and many still don't know what is going on. I kept walkin..."
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11/10
Be careful with your first Tysabri infusion.It's not your imagination,when I had mine I had a sudden burst of energy the first day. Because I felt good for the first time in a long time I went to an event that required lot of walking and was out in the sun. My body paid for it for an entire week.. For me I believe the Tysabri is doing what it is supposed to as far as progression of MS but I don't see any miracle cure for my everyday symptoms..Hope that is helpful..
05/09
Thank you for your reply to my "shocking" episode with sub-q Betaseron shots. I was doubtful about healing, but pain has subsided and numb area is growing smaller. Just hope it doesn't happen again!
09/08
Just wanted to let you know I can relate. I hope my goofy reply to your post was not off-putting. I do understand: I have an abnormal brain MRI, but negative LP and can pass the standard neuro exam. (I can touch my nose and take 3 steps...) Again, I hope your GP will help you with a proper follow-up, and sorry you are the latest castaway stuck on the S.S. Limbo...
09/08
Like you I had a painless LP this week with no after effects. I am sorry you don't have the right fit yet with the care you deserve. Don't give up on searching - oxymoron or not!
Laura
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