"I have that problem! I have myoclonus in my legs and spine, and spinal damage."
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About Me: Female, 51, Fort Worth, TX, member since Nov 2007
I'm a graphic artist and leather mask-maker living in Fort Worth, Texas. In my spare time I play upright bass, make leather masks, and goof off. I was diagnosed with relapsing-remitting MS in 2007. I took Copaxone until 2009, and Betaseron until 2011. I am currently in
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remission. I have a moderate to light lesion load in the brain, and lesions in my spinal cord at T6, T8, and the conus. Ongoing symptoms include numbness, cognitive impairment, optic neuritis, muscle spasms, leg weakness, neurogenic bladder and bowel, and myoclonus.
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Best Answers: 31Top Answerer:
Neurology
Nov 04, 2015
"I'm in the same boat - may have to self-catheterize soon, as I have retention and incontinence. No advice, just sympathy!"
Nov 04, 2015
"That was one of my very first symptoms! I had the hardest time steering - I went to the left instead of straight through a doorway, and kept whacking my left shoulder on the frame. It was like the alignment on my car was off and I had to..."
A few years back, I commented that I was going to try to get pregnant. I got off of all the drugs that weren't safe during pregnancy. This included my Baclofen and the...
I went to the UTSW university hospital, which is St. Paul Hospital on August 20th for a thyroidectomy. They took out the whole thyroid, and there's now a 2 inch incisi...
She didn't see anything out of the ordinary in the bloodwork, which is great. She wants to ask another doctor whether I'll still need low-molecular weight heparin...
10/14
Thank you for responding to my post. My neuro is local MS specialist, Not John Hopkins. Your response was very helpful and I thank you so much.
10/14
I've been hanging out in an alternate location but wanted to check on your pregnancy. Eeek! Send details. xoxoxox
12/13
Just a quick note to say hi! Happy Holidays, Jen! Thanks for all your advice--especially in regards to UTSW. I'm doing well, and I account it to switching to a neuro at UTSW. It's fabulous just like you said, and I'm doing well.
Deb
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