"Hi all,
Well it's been almost 2 months since I started the diamox after being diagnosed with (acquired) chiari 0. It's helped a lot. Prior to starting it, I had a headache every day since the end of December. I now get one like on..."
SG2's Profile
Are you sure you want to delete this personal page?
Profile
About Me: Female, Farmington, CT, member since Nov 2008
May 08, 2012
"HI everyone, I usually hang over on the chiari board but I'm venturing over here for my son, hoping for some insight/tips/advice..
My 5 yr old son has been complaining of lumbar back pain and leg numbness x 2 months, progressively ge..."
Apr 25, 2012
"You can contact TCI via email, fax or mail. They are great and easy to work with.
They did not charge me anything to review my case. They only charged me when I came to visit. They will review your records, mris, etc... first befo..."
No journal entries
03/12
hey SG2,
I'll be traveling to NY to The Chiari Institute. There are some NS's in CT... I know Dr. Deluna is over at Yale, but it really depends on your case. I'm going to need posterior-fossa decompression along with craniocervical fusion so TCI is the right place for me. Have you seen anyone yet or received any diagnosis? Just know that although there are a lot of "chiari specialists" around, their level of specialty is really what matters. For instance some NS's are still opening the dura and patching it back up, but this is an outdated procedure. Anyways, you're so close to NY, if you can work it out, you should just go to TCI :) feel free to message me any time, it's nice knowing there's fellow CT Chiarian around <3
 | ||||
|
Remove
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker. | ||||
