"I've had 4 scopes down the throat and they discovered that my entire esophagus is DEAD. They call it acute esophageal necrosis. What I've read online is that less that 50 people in the world have been diagnosed with this, so I'm one of t..."
MaryKathleen116's Profile
Are you sure you want to delete this personal page?
Profile
Status:
...
About Me: Male, 70, MN, member since Apr 2019
Have MAI disease in both lungs. Left lung is bad and hurts quite often. Went to National Jewish Hospital in Denver, Co. 4 times. They wanted to remove most of left lung, but the after affects were not good, with possible double lung & heart transplant.
...
[More]
Was diagnosed with 3 Tarlov Cysts on lower spine. One has eaten it's way thru the bone. Was born with scoliosis, so between the 2 spine problems, have a lot of pain. The Tarlov Cysts are pressing on the nerve that causes sciatica, and have been laid up for 5 months due to severe pain. Taking Tramadol 50 mg. 4 times daily, and it does absolutely nothing for the pain. Also taking Flexeril for Fibromialga.Was taking Naprosin but had bleeding problems and had to stop taking it. Wish I could take it as it worked better than Tramadol.
Was hospitalized twice last year for loss of blood. First time received 2 units of blood. Second time received 4 units of blood. Had the camera down the throat test and was diagnosed with Acute Esophageal Necrosis.
3 RARE DISEASES:
MAI
Tarlov Cysts
Acute Esophageal Necrosis
Plus Fibromyalgia, arthritis, bleeding ulcers, scoliosis, sciatica, and type 2 diabetes [Less]
Was diagnosed with 3 Tarlov Cysts on lower spine. One has eaten it's way thru the bone. Was born with scoliosis, so between the 2 spine problems, have a lot of pain. The Tarlov Cysts are pressing on the nerve that causes sciatica, and have been laid up for 5 months due to severe pain. Taking Tramadol 50 mg. 4 times daily, and it does absolutely nothing for the pain. Also taking Flexeril for Fibromialga.Was taking Naprosin but had bleeding problems and had to stop taking it. Wish I could take it as it worked better than Tramadol.
Was hospitalized twice last year for loss of blood. First time received 2 units of blood. Second time received 4 units of blood. Had the camera down the throat test and was diagnosed with Acute Esophageal Necrosis.
3 RARE DISEASES:
MAI
Tarlov Cysts
Acute Esophageal Necrosis
Plus Fibromyalgia, arthritis, bleeding ulcers, scoliosis, sciatica, and type 2 diabetes [Less]
Interests:
Pain, Back pain, Chronic Pain, Fibromyalgia, Senior Health, Skin conditions, eczema, Sleep disorders, Insomnia
You haven't updated your status yet!
Apr 01, 2019
Apr 01, 2019
"My doctor never followed up on that. After 30 years with that doctor never really caring about me, I fired him and found a new doctor. I told my new doc about the cyst that was found a decade ago, and he ordered an ultra sound. I was tol..."
Apr 01, 2019
"You said, "but found it very uncomfortable so it was stopped." That sounds to me like your son was awake during the procedure? If so, get a new doctor because they knock you out cold when this procedure has been done. I've had it done tw..."
No journal entries
No photos
No messages
No Trackers
No Tickers
Add this user as a friend
 | ||||
|
Remove
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker. | ||||
