"What lyme disease test did you have? IF it was the ELISA you may want to have a western blot run as the ELISA is not very accurate and there can be false negatives. You live in a lyme endemic state."
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About Me: Female, OH, member since Oct 2005
I have had problems since 3 bullseye rashes in 1992, followed by severe, infectious, neurologic symptoms. Symptoms went into remission for several years but came back after having a spinal fusion 3 years ago.
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Pets, hiking, Fishing, jewelry making, Exercising, Nutrition
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Feb 13, 2010
"You may want to be tested for lyme disease."
Jan 28, 2010
"There is diagnostic criteria that has to be met to be diagnosed with FMS. One criteria is 11 out of 18 tenderpoints. Unfortunately people often get this diagnosis for the reasons you stated above, without proper testing. The testing s..."
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08/09
hello, my name is Kelley, i am an RN too, I live in Dayton Ohio, but grew up in southern California. After 1yr of dr's appts and mystery symptoms, I have come to believe I may have Lymes disease, and may have had it since I was 11yr old (trip to mountains in CA, very sick afterwards- told by docs was flu and 1st outbreak of herpes simple), Interestingly enough, i never had another bout of oral herpes, until the last 9 months- having reoccurences sometimes 2xmonth- accompanimg muscle pain, extreme fatigue, depression, ect.... So, my email is ***@****- please email me if ya would, i'd like to ask you some questions please. Thanks, Kelley
06/09
Just a quick note to say hi ! I see you wrote me a message, but for some reason.... I can't open it !!!!
05/09
Just a quick note to say hi! I still haven't heard back from Igenex regarding my question. My next one will be trying to undersand their comment on sensitivity/confidence of the test (that's another one that isnt clear to me)!
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