"Been seeing a Pian Specialist the last few months, been trying me on different meds, Currently on Ryzolt 300 1x day and Topomax 10mg 4x a day, still getting used to it but it seems to help a bit, still have burning pain at the base of my..."
"Thanks for the Info, I live in the Seattle area, and have been seeing the a neurosergeon at the University of Washington since 2001 when I had my first major surgery, but as of late, it seem he has no time to talk, and I only see him fo..."
I also have NF1 and am suffering constant pain on the right side of body. My PCP is concerned there is something else along with NF. as my tumors do not appear at this time to be pushing on my spinal cord. I am on Inspire site for NF1~and FB. We should talk.
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