About Me: Female, 52, Arlington, VA, member since Feb 2010
I am an artist first and foremost. I do have a part-time day job to maintain income until I can support myself with my ceramic art. I don't intend for my diagnosis of MS in December 2009 to keep me from living that dream. I intend to learn how to live with this condi
[More]tion while leading a vibrant, creative life. I am taking copaxone because it has the least number of and severity of side effects. However, the site reactions are no really no fun and are freaking me out a bit. I am very interested in the Swank and similar diets as a natural way to manage this disease.
"My experience is that it gets better. I just posted my routine - created from suggestions of users and my neuro - that seems to helped with the bad site reactions and bee sting I was getting.
I get my autoject ready, along with a cot..."
"I've been on Copaxone since January 25th (yes, I will always remember that date). I did have some bad site reactions for a while, but they went away. As for the bee sting, I will share my routine, which I put together from several peop..."
It was really great to hear from you. I was out and about today getting my last IV infusioin and then did some furniture shopping. It was really cold today, almost like a winter not a spring day. I came home and took a long "warm" bath to get the chill out of my bones. I am seeing my neuro tomorrow. His nurse said he wants me to come in to talk about the MRI they just did and I already know he suggested we stop copax. I hope he has a good reason for it because I am totally used to copax and it is certainly not as harsh as the other drugs. Did you find a new neuro? I hope so and most importantly, hope you get good care. It is hard to find a good one around here even with all the choices you have. Take care and again it was so nice to hear from you. Stay warm.
Just a quick note to say hi! Glad to see the Copaxone injections are finally settling into a routine. It has been a year for me now and I am sad that my neuro wants to now change to a different DMD because I was very comfortable with Copax. I hope you wil start seeing positive results within the next couple of months. Fingers crossed that you remain stable. Take care.
DId you know that Dr. R is the Chief of Neurology at VHC? I was in the hospital back in 2008 for 22 days after an acute exacerbation and she took care of me the first weekend I was in there. She is the one who went against another doctor's opinion and got me tested for MS. I owe so much to her because if she hadn't been in charge of my care that weekend, the other doctor would have tried sending me home and we would not have known what went wrong. She does know about MS, not an MS specialist perse, but just as good as far as I'm concerned. I think you might outgrow her at some point and really need an MS doctor, so when that time comes you can ask for a referral and she won't be offended. I go to GW for my neuro. Take care and thanks for your note. Julie
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