"I am so sorry to hear of what your going through. It's so sad that the m.d. after their name gives most doctors(not all) the God complex. You need to take your son to a neurosurgeon who specializes in Chiari. It's not you or your sons im..."
Wvchiari's Profile
Are you sure you want to delete this personal page?
Profile
Status:
...
About Me: Female, 44, Charleston, WV, member since May 2010
I am a proud mother of two wonderful boys. My youngest son has Chiari Malformation that was found during a CT scan for an injury. Bless the Lord he is so far asymptomatic. I pray he stays that way. He is such an inspiration to me.
Interests:
emotional health, Bipolar Disorder, Depression, ADD/ADHD, Pain, Chronic Pain, Fibromyalgia, Back pain, Nutrition, Vitamins & Supplements, Family Health, Children's Health
...
[More]
, Migraines, Allergies, chiari malformation
[Less]
You haven't updated your status yet!
Jun 08, 2010
"Your symptoms could be a number of things but you complain of things that are very similar to Arnold chiari malformation or another neurological condition. . My son has Chiari and I was shocked to see truly how under diagnosed it is. I a..."
Jun 08, 2010
"Dawn,
Your strength in such a hard time is inspiring. My son is 7 and was recently diagnosed with Chiari. So many doctors are so quick to dismiss Chiari as something not to worry about. When my son was diagnosed his family doctor said "..."
No journal entries
No photos
02/11
Just a quick note to say hi! I see where your profile says Charleston WV. I'm from Summersville. Hope you are doing well and would like to talk and find out who your drs are. I'm having trouble locating a doctor around here!!
06/10
Hi.Just saw a post and it said WV Chiari..I recently had chiari diagnosed after MVA and had surgery in Pittsburgh, PA March 12 after an extended stay....brainiac7 on here...be interested to talk.
05/10
Just a quick note to say hi!...I sent u a PM as I wrote too much for one of these little notes...lol...
"selma"
05/10
Just a quick note to say hi! too many times it is the dr that makes us feel like hypochondriacs...and we never give their full list of issues and we get mis dx'd.....the drs need to learn to have patience and to listen to their patients.
I am sure Dr Di will be able to help u both...I have heard many good things about him : )
"selma"
No Trackers
No Tickers
 | ||||
|
Remove
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker. | ||||
