"Thanks so much!! Sent you a little note"
spitfire2's Profile
Are you sure you want to delete this personal page?
Profile
About Me: Female, 42, chicago, member since May 2010
I had a left temporal lobectomy for refractory epilepsy in August 2007. Part of my surgery included resection of an astrocytoma. I have been dealing with chronic facial pain ever since, diagnosed as central pain syndrome expressed as atypical facial pain. I'm hoping
...
[More]
to connect with someone else in similar situation, exchange ideas.
I also have adhesive arachnoiditis, and hope to connect with some people who are knowledgeable about this degenerative disease. I recently had an extremely painful flareup, which has calmed down somewhat, but I still have pain, and worry about my future situation.
I love WWII props, classical music, history, and philosophy. And a good laugh or two. Hoping to make pain more manageable so that I can get life going again. Would enjoy being in contact with other individuals who are in a similar boat, or have found answers to their pain issues relating either to brain surgery/central pain syndrome, or adhesive arachnoiditis. Thanks much for reading!
[Less]
I also have adhesive arachnoiditis, and hope to connect with some people who are knowledgeable about this degenerative disease. I recently had an extremely painful flareup, which has calmed down somewhat, but I still have pain, and worry about my future situation.
I love WWII props, classical music, history, and philosophy. And a good laugh or two. Hoping to make pain more manageable so that I can get life going again. Would enjoy being in contact with other individuals who are in a similar boat, or have found answers to their pain issues relating either to brain surgery/central pain syndrome, or adhesive arachnoiditis. Thanks much for reading!
[Less]
Interests:
Pain, Chronic Pain, Headache, brain tumors, epilepsy, Back pain
Apr 25, 2015
"Thank you so much to both of you! I really appreciate your help. I think that's a good idea, contacting an endometriosis excision expert, getting another opinion. So yes, I'd be quite interested. I have been wondering for a while about..."
Apr 23, 2015
"I had surgery for endometriosis in January 2012, and was on lupron depot for 3 years. I had my first period this past February, with some pain, and then March and now April. My period in March was extremely painful, as is my current Ap..."
No journal entries
No photos
04/14
Hi Spitfire. Saw your name and wondered how you're doing. I hope you're getting to the bottom of your spine issue and getting some relief. Best wishes.
05/11
Hi!I had a craniotomy to remove a tumor on Jan.3,2011.I too am having that horrible tight,squeezing feeling on the side of my head all day long.Haven't talked to the doctor much about it yet,but I will at my next appt.Have you gotten any answers as to what it is?Any info would be great.You can email me at ***@**** you.
Jenni
 | ||||
|
Remove
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker. | ||||
