"Hi, I have it too. Not an active community I see and I guess that's a good thing. Anyway, sorry you have it; sorry I have it.
Compare notes sometime if you'd like. I feel like I'm on an Island."
MissyPrissy's Profile
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About Me: Female, 54, FL, member since Jan 2011
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Nov 14, 2011
"I have it all over too. It is awful! I wish the name would change to include other body parts....not a good description.
Mirapex is the only thing helping during this severe time. Before that I have been on Requip and klonopin; eve..."
Nov 14, 2011
"Good luck; hoping you get an answer and treatment to what is causing you to be dizzy and having those annoying symptoms. All the best :)"
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12/11
Just a quick note to say hi! I've not been about much and have just seen your question regarding my spinal myoclonus it is not RLS and happens during the day as well as during sleep. I hope you are doing okay.
Suz
10/11
Well the BHJS has been extremely frustrating to get diagnosed. I thought I was getting somewhere when mr Dr arranged to get a skin biopsy done but then they couldn't find a dr near me that is trained to look for this. It appears that there is only one specialist that can and he on the opposite side of the country. SO I will have to pay big $ to get it done. So right now I am trying to get in to a genetics clinic which will be covered by medical. As for the Chiari, I think I am at the point that it is as good as it's going to get and so I am learning to cope with it. How about you? How is everything going?
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