"Had nerves burned at C2 and C3. A week later having deep throbbing pain and extremely sensitive in that area- is this normal. Tried icing it. "
adventurer53's Profile
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had a total knee revision in December and total thumb reconstruction and carpal tunnel release two weeks ago in February, but no spinal fluid leak since last October ! horray!!!
About Me: Female, 68, Cook, MN, member since Feb 2011
A 57 year old female who loves adventure, especially in the outdoors .I am a Child of God and God is the one along with my family and friends, who has given me joy, strength and courage for the journey. I have a wonderful husband and two great adult sons. Love gardenin
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g, swimming, golfing, canoeing, hiking, cross country skiing, being with friends, active in our local church. Multiple spinal cord and low back problems since 2003, which has totally changed what I can do and now I resigned from my job as Swimming Pool Coordinator - taught in the school and for Red Cross.- First Aid, Pro-rescuer CPR, Wilderness First Aid, Lifeguard Training, Swim Lessons, Water Aerobics, Babysitter Training. Am also an Educator and sub as I can in the public schools. Motto - Life is an adventure with God!!
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Interests:
Pain, Chronic Pain, tethered spinal cord, arachnoiditis, Spinal fusion, pseudomeningocele, Spinal Cord Tumors, spinal cord stimulator implant, Back pain, csf leaks, Headache
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, Arthritis, Allergies, autoimmune disease
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Best Answers: 1Top Answerer:
Pain
had a total knee revision in December and total thumb reconstruction and carpal tunnel release two weeks ago in February, but no spinal fluid leak since last October ! horray!!!
03/14
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Comment
Jan 25, 2016
"If it persists after checking for these other conditions, maybe try a pt facility with a different approach. I switched over a year ago- the other one was fine for a lot of people but this one treats my whole body and does myofacial rele..."
Jan 25, 2016
"Thanks for the encouragement! I'm scheduled to see my head neurologist but not til the end of March!!! I asked to see the only doctor at Mayo that Insee has published a great deal on spontaneous CSF leaks. The clinic that asked for the r..."
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03/14
Just a quick note to say hi! No worries Shirley, I feel it is important to know what may be at the root of all of our issues and the more we all stay in contact we can learn from each other <3
03/14
Just a quick note to say hi! Goodness u have been thru the mill and back, I was glad to hear from u but so sorry all that has been going on with u and ur family...seems none of us are immune to having so much going on....
Have they ruled out EDS for u...with all these issues I wonder....wow....I pray u make a quick recovery from ur last surgery and do keep us posted on ur next one as we can post a prayer thread for u, it does not have to be Chiari surgery....once u r a member here we care about everything to do with u....so try and pop on when u can....sending u <3 ((hugs)) and prayers
03/12
Just a quick note to say hi!...Hey Shirley....thanks for the update...wish I had known about the surgery ahead of time...I would have posted a prayer thread for u.....but sending prayers and healing MoJo for u now!!
I had a student nurse get me up when I should stay flat after an epidural and wound up in the hospital for 5 days with a CSF leak..y they feel the need to pull us up and move us,. I was asleep...and was told to stay flat...the dang nurse wanted me to go on a bedpan....ugh...
Hope u heal fast : )
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