"So, I wanted to see how long after surgery you waited before getting back to your routines? For me this includes light cleaning, laundry and possibly driving. I have had 2 surgeries, Dec 29th and Feb 16th. I don't know if that would impa..."
gjjl's Profile
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Status:
spinal fluid leak is 100% gone BUT my cyst inside my spinal cord is a lot bigger down right now a 3rd surgery maybe in the near future
About Me: Female, 39, Dallas, TX, member since Dec 2015
Chiari malformation and syringomyelia. I also have a history of endometriosis and had to have a hysterectomy at 28. My husband and I were blessed with 2 children. I have low thyroid as well.
Interests:
Thyroid Disorders, Weight Management
Mar 27, 2016
"The hydromyelia might be the reason your doctor wants surgery. I have syringomylia and I had to have surgery because it causes nerve damage and if I had left it untreated the nerve damage would just worsen over time. Myself I was born wi..."
Mar 27, 2016
"Happy Easter!! I hope you had an amazing weekend!! ♡♡♡♡"
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04/16
You're in my thoughts all the time, but especially today.
All my thoughts and prayers for you to stay strong and get through this trying time.
01/16
Hey there! I'm going to pm you soon...I'm so sorry you're going through this! I hope your docto has gotten back to you. I'm going to pm you and update on Chiari forum..I too am feeling very sick lately. The nausea is keeping me down and...still. So...blah..don't know if it's a bug or what-what annoying w/Chiari, is it seems we don't know up from down anymore...what's what, ya know? Ugh. I'll get w/you and then w/our family soon.hoping I feel better tomorrow. I'm really hoping your doctor is able to figure out what's going on w/you...I know any kind of liquid/substance can be tested for infection/CSF. Crossing fingers he/she does that so that you know! Hugs and prayers to you!<3
01/16
Hey Ginger....just thinking about you...praying you're taking things easy and relaxing. Healing!!! Sending you many good thoughts, prayer and ease. ;)
01/16
Thank You!!!!! I'm blessed to have this community , with people like you, where I can voice my worries, my sadness and pains, without being judged or...picked apart. We are all navigating these waters together. Thank you for the hug-you're very right-I do need one. Trying not to "give up", as in zest for life. Me & my "brick" are hugging back at you!!! <3
Again, thank you!!
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