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02/18

I am a mother of a 13 month old who was referred to a pediatric cardiologist for an "innocent heart murmur" upon the ECG my daughter was diagnosed with 'borderline Prolong QT' with a reading of 459. We were sent home and told watch her carefully and we'll check again in 6 mos. Reading your suggestion, I will be her advocate and find the electrophysiologist for a second opinion.

spade22

05/12

Hi! I'm just wondering if you are still on MH? I read some of your posts about LQTS and had some questions for you (my doctor thinks I may have it). Thanks

kikincookie

11/10

normal stress with echo,stress test,ekg's,cardiac MRI,echo's.All normal.event monitors holter monitors PVC's and like 2 runs of V-Tach.Everyday I worry about being by a hospital or defibillator,I worry SO much about V-Fibb or SCD,I cant do things I LOVE like go fishing,hunting bc I feel these irregular heartbeats left side chest pains,I think something will happen to me and nobody will be around to help me within the 5 mins they say u have if u need to be shocked back into regular rythm. I have a 5 month old son and want to do the things that he wants to do when he gets older,but I also want to be there for him and not be in danger of SCD.right now I'm so scared of dying of this that I cannot live! please email me and talk to me about this at michael_cook23 @hotmail.com

grendslori

06/10

Just a quick note to say hi! Hi stevie, I was just on the pediatric cardiology board and someone was asking about Long Q-T and I was wondering if you wouldn't mind jumping over there to help them? thanks!

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