"If so, what manufacturer makes it? Muscle weakness from Baclofen has been very difficult for me and I am injuring muscles more. In the past, Northstar and Upsher made pills that didn't weaken the muscles as much, but then they changed ..."
sara12345's Profile
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About Me: Female, member since Jun 2011
My biggest disability is 24/7 migraines which are often severe, caused by a major stroke about 5 years ago. I am now 61 years old. Plus I need 12 hours of sleep every night since my stroke or my migraines get a lot worse. I also have kidney failure, stroke pain and d
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isabilities, Trigeminal Neuralgia which causes electric shock like pain in my mouth, fibromyalgia, myoclonus which is involuntary jerking all through my body caused by my stroke (now treated), brain aneurysm, obstructive and central brain sleep apnea, osteoporosis, hate to eat since my stroke, and depression (now treated with med) and many other medical problems.
Also a Prolia injection that I got almost 2 years ago, gave me permanent terrible bone and skin pain which prevents me from wearing my CPAP machine. That makes my migraines worse, increases my risk of another stroke as well as other diseases.
I have FINALLY learned to appreciate what I have and accept that I am very disabled. I used to work more than full time, was an active volunteer and had hobbies. Now can barely do much. What has led me to be accepting are the stories of others who have it far worse than I do, but are grateful for what they do have.
But I will say that the 10 out of 10 pain with unbearable migraine pain (sending me to the ER) and the Trigeminal nerve pain which is like electrical shocks are not nearly as painful as my severe depression was, now well treated. [Less]
Also a Prolia injection that I got almost 2 years ago, gave me permanent terrible bone and skin pain which prevents me from wearing my CPAP machine. That makes my migraines worse, increases my risk of another stroke as well as other diseases.
I have FINALLY learned to appreciate what I have and accept that I am very disabled. I used to work more than full time, was an active volunteer and had hobbies. Now can barely do much. What has led me to be accepting are the stories of others who have it far worse than I do, but are grateful for what they do have.
But I will say that the 10 out of 10 pain with unbearable migraine pain (sending me to the ER) and the Trigeminal nerve pain which is like electrical shocks are not nearly as painful as my severe depression was, now well treated. [Less]
Interests:
Kidney Disorders, Pain, Fibromyalgia, Chronic Pain, Depression, Stroke, Sleep Apnea, Central sleep, trigeminal neuralgia, aneurysm, tardive dyskinesia
Best Answers: 16Top Answerer:
Pain
Mood Disorders
Neurology
Jan 22, 2019
"What did your doctor tell you?"
Jan 22, 2019
"Botox gave me significant help. Acupuncture gave me amazing help, especially with the 2nd acupuncturist that I tried. Aimovig, the new preventative migraine medication gave me even more amazing relief together with the acupuncture. Bu..."
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11/13
Just a quick note to say hi! Hello Sara, nice to see you back on the depression. You always give good advice.
07/13
Just a quick note to say hi! sara I was reading something in a medical write up. like the pace makers they put on youreart. they are now putting them in the brain to stimulate the part of the brain that is not working properly. they are doing miracles now. I thought about you when I read this. good luck sweetie. love Charlene (mandy876)
07/13
Hope you feel better soon! how are you doing. have you seen your surgeon. hope everything works out good. my thought are with you. love Charlene (mandy876)
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