"oh...sorry...this one
http://www.medhelp.org/posts/Transplants/Post-Transplant-Re-occurence-of-HCV-/show/2344253"
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likes this quote: "Be humble you are made of earth, Be noble you are made of stars "
About Me: Male, Portland, OR, member since Jul 2011
UPDATE 9/23/2014 - Got "the call" and received my new liver on August 23, 2014.
Surgery took 5 hours and went very well. 2 days in ICU and then into transplant recovery u ... [More] nit. Released to go home on August 29th. Feeling better every day and hope to return to work (at least part time) next week. I have been truly blessed indeed.
Thank you to all the amazing people here who have been so supportive and helpful - you are the best !!!! And of course a special shout out to Hector !!! You continue to be a role model and hero.
It's official !!! SVR confirmed 8-23-2013, 48 weeks was a long haul but the end result was worth it !
Completed triple treatment 2/22/2013
3/26/2014 - Still virus free and all side effects of treatment seem to be gone.
Stage 4 Grade B Cirrohotic
Diagnosed with HCC 3/27/2013 - single 4cm tumor
AFP reached a high of 281 in May, 2013
Referred for liver transplant evaluation May 2013
1st DEB-TACE Treatment completed on May 8th
TRANSPLANT DECLINED (not listed) 5-10-2013
Possible Re-Eval pending results of 1st DEB-TACE In 6 Months
5/6/2013 AFP = 281
5/22/2013 AFP = 54.7
7/1/2013 AFP = 106
9/2/2013 AFP = 11
11/21/2013 AFP = 9.5
2nd TACE Treatment July 19, 2013 - largely ineffective - scheduled for gall bladder removal on August 6th and also RF ablation or ethanol injections at the same time. We are hoping this will knock it down for a while, hopefully a long while.
Gall Bladder removed 8/2/2013. This was followed by my first RF ablation, and then by ethanol injections. Surgeons seem pleased with results, but of course it is way too early to tell.
9/17/2013 - First AFP after GB removal and RF ablation and ethanol injections is down to 11.5 - this is good news !
Also my AST is 36 and ALT is 48 - record lows, lowest in decades, and....
" MRI shows no areas of viable tumor and all veins are patent (no tumor thrombus).", this from my surgical oncologist, Dr. Pippa Newell !
Of course, what happens next will be equally important - will the AFP stay down, will the tumor stay gone. But I am grateful for this good news right now.
11/27/2013 UPDATE:
AFP = 9.5
Bilirubin and ALT rising from previous values, everything else pretty good -
Evaluation of latest imaging shows no sign of original tumor.
Possible trans plant re-evaluation Feb/March 2014
Update March 26, 2014 : February Labs remain good AFP still at 9.5. New 1cm growth detected in right lobe (original tumor in Left lobe). Oncology team believes it benign.
They also propose I be reevaluated for transplant and OHSU has agreed. This will occur the middle of April.
If I can get through this with just a fraction of the grace, dignity, and courage that HectorSF has shown to so many of us for so long I will be satisfied.
On the fence about treating ?
Don't delay - be proactive - stay proactive !
Seriously folks, I delayed treatment and look where I am now...
[Less]
Surgery took 5 hours and went very well. 2 days in ICU and then into transplant recovery u ... [More] nit. Released to go home on August 29th. Feeling better every day and hope to return to work (at least part time) next week. I have been truly blessed indeed.
Thank you to all the amazing people here who have been so supportive and helpful - you are the best !!!! And of course a special shout out to Hector !!! You continue to be a role model and hero.
It's official !!! SVR confirmed 8-23-2013, 48 weeks was a long haul but the end result was worth it !
Completed triple treatment 2/22/2013
3/26/2014 - Still virus free and all side effects of treatment seem to be gone.
Stage 4 Grade B Cirrohotic
Diagnosed with HCC 3/27/2013 - single 4cm tumor
AFP reached a high of 281 in May, 2013
Referred for liver transplant evaluation May 2013
1st DEB-TACE Treatment completed on May 8th
TRANSPLANT DECLINED (not listed) 5-10-2013
Possible Re-Eval pending results of 1st DEB-TACE In 6 Months
5/6/2013 AFP = 281
5/22/2013 AFP = 54.7
7/1/2013 AFP = 106
9/2/2013 AFP = 11
11/21/2013 AFP = 9.5
2nd TACE Treatment July 19, 2013 - largely ineffective - scheduled for gall bladder removal on August 6th and also RF ablation or ethanol injections at the same time. We are hoping this will knock it down for a while, hopefully a long while.
Gall Bladder removed 8/2/2013. This was followed by my first RF ablation, and then by ethanol injections. Surgeons seem pleased with results, but of course it is way too early to tell.
9/17/2013 - First AFP after GB removal and RF ablation and ethanol injections is down to 11.5 - this is good news !
Also my AST is 36 and ALT is 48 - record lows, lowest in decades, and....
" MRI shows no areas of viable tumor and all veins are patent (no tumor thrombus).", this from my surgical oncologist, Dr. Pippa Newell !
Of course, what happens next will be equally important - will the AFP stay down, will the tumor stay gone. But I am grateful for this good news right now.
11/27/2013 UPDATE:
AFP = 9.5
Bilirubin and ALT rising from previous values, everything else pretty good -
Evaluation of latest imaging shows no sign of original tumor.
Possible trans plant re-evaluation Feb/March 2014
Update March 26, 2014 : February Labs remain good AFP still at 9.5. New 1cm growth detected in right lobe (original tumor in Left lobe). Oncology team believes it benign.
They also propose I be reevaluated for transplant and OHSU has agreed. This will occur the middle of April.
If I can get through this with just a fraction of the grace, dignity, and courage that HectorSF has shown to so many of us for so long I will be satisfied.
On the fence about treating ?
Don't delay - be proactive - stay proactive !
Seriously folks, I delayed treatment and look where I am now...
[Less]
likes this quote: "Be humble you are made of earth, Be noble you are made of stars "
04/13
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11
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Comment
Oct 14, 2014
"Hi All,
Just got off of the phone with my TP coordinator and got some disturbing news...
My ALT and AST having been rising rather rapidly in the past 10 days or so and...
They want me to come in asap for an ultrasound and a PCR...."
Oct 14, 2014
"Curtis was the inspiration for "The Blues Brothers"....
He lives here in the Pacific NW....
http://en.wikipedia.org/wiki/Curtis_Salgado
Just got some disturbing news...see new post..."
Thank you Dee for your reply !
First shot was 3:30pm Friday the 23rd of March, riba and incevek started at 6:00am the next morning.
I was pretty freaked out about s...
Well after many delays, meds are on their way, and first shot scheduled for 3/23/2012. Wish me luck !
09/14
Just a quick note to say hi! Am so happy for you and your family. Take care of that prize possession you received.hugs and prayers.
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