"HCV Advocate (run by all-around Hep C superstar Alan Franciscus!) has a specialist on Hep C and disability (Jacques Chambers) and they have a lot of good information too
Check 'em out!
http://hcvadvocate.org/eblast/eblast_May15_15...."
BigDaddy_59's Profile
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I, by myself am SO much, you by yourself are also SO much, but WE together are SO MUCH MORE. Glad that you all are part of my 'we'
About Me: Male, Sacramento, CA, member since Oct 2011
I have known I had Hep C since 2003 but probably got it around 1983. Non practicing alcoholic/addict.
Cirrhosis and portal hypertension and very mild encephalopathy (I kn ... [More] ow that if I can say that word, I don't have it at the time!!!).
2 time PegRiba relapser and discontinued Infergen (non-pegylated interferon) Riba after my platelets got down to 6 (not a typo!). They told me to have someone else tie my shoes as they were afraid I might suffer a brain hemmorage if I bent over - hah!
Getting ready to start a fourth Tx with telaprevir and they are also putting me on eltrombopag (Promacta) to keep my platelets around 50 which is where they are now.
Best support site I have found for Hep C 'cuz the people here rock!
I am still here only because of the Grace of God
Chris [Less]
Cirrhosis and portal hypertension and very mild encephalopathy (I kn ... [More] ow that if I can say that word, I don't have it at the time!!!).
2 time PegRiba relapser and discontinued Infergen (non-pegylated interferon) Riba after my platelets got down to 6 (not a typo!). They told me to have someone else tie my shoes as they were afraid I might suffer a brain hemmorage if I bent over - hah!
Getting ready to start a fourth Tx with telaprevir and they are also putting me on eltrombopag (Promacta) to keep my platelets around 50 which is where they are now.
Best support site I have found for Hep C 'cuz the people here rock!
I am still here only because of the Grace of God
Chris [Less]
Interests:
Hepatitis C, cirrhosis, thrombocytopenia, encephalopathy, Narcotics Anonymous, Telapravir, alcoholics anonymous, portal hypertension, Fibromyalgia, porphyria cutanea tarda
...
[More]
, insulin diabetic
[Less]
Best Answers: 4Top Answerer:
Hepatitis
I, by myself am SO much, you by yourself are also SO much, but WE together are SO MUCH MORE. Glad that you all are part of my 'we'
08/14
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Comment
SVR on Incivek, now dealing with portal vein thrombosis they are going to try and dissolve with heparin after 6 banding procedures. Balancing act between dissolving and bleeding out :o) (platelets @ 35)
01/14
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4
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Comment
SVR on Incivek, now dealing with portal vein thrombosis they are going to try and dissolve with heparin after 6 banding procedures.
01/14
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Comment
Apr 19, 2015
"Stick with the meetings!
Sobriety is selfish because it has to be. You need to think about getting yourself better before all else.
I have come to see other people's actions as totally human and something I need to accept with ser..."
Two 48-week PEGrIBA tx's - 1 shot a week
1 Infergen (shot a day) for 10 weeks (had to stop due to low platelets)
20 weeks (so far) on triple with Incivek.
Only 28 m...
Yeah, this 20g's of fat *****! I tried coconut oil and loved it but if I take the whole 20g as coconut oil, I found it gives me bad diarrhea. Same for the flaxseed oil...
Oh man, I can really relate to all the posts dealing with fat eating. *****, but the alternatives are REALLY not fun!
07/13
OMG. I've had coffee with bill w. Have you? I've known him for 9yrs. catch ya later Bluebird
12/12
I just wanted to let you know that my 4wk viral load was undetectable. It has been a wild ride but I'm almost through my 6th week and now that I know I only have 6 more weeks on incivek, I can make it. I thought that I had to take the incivek for the whole 48 weeks and not just 12. I saw my doctor yesterday and found out I was undetectable and that I only had six weeks to go and I was happier than I've been since I started. Thanks for your encouragement and suggestions.
Garry
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