Sep 12, 2016
"They also had an independent genetic study going on with EDS and Chiari and WashU. They said they'll have my results in a month or two. I scored 9/9 on the beighton scale"
Sep 12, 2016
"So the neuro I was really excited about said he's never heard of complications with EDS and the durapatch and assured me that all of his surgeries have been without complications...what are your Dr's you have closest to MO? I know they'r..."
Sep 12, 2016
"A coincidental finding on my CT today said persistent metopic suture. It's the suture that's vertical on the front middle of your head that usually goes away before 10 yrs old. I haven't been able to find symptoms, but did say there may ..."
