"I have had some sort of autoimmune issue coming and going for years now, without definitive blood tests to determine what it is. My last visit with a rheumatologist was 2 years ago and he said, "You're not crazy. 36 year olds don't typ..."
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About Me: Female, 42, Pennington, NJ, member since May 2007
I've been TTC with my wonderful husband for about 3 years now. It took a lifetime of kicking and screaming, but I found a doctor that finally diagnosed me with PCOS in July '06. If only they'd figured it out 5 years earlier... BEFORE I started packing it on! :o)
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Funny, even though I had surgery for a cyst at the age of 16 and several ruptures in my early 20's, and horrible periods.... it still took that long to find a doctor who finally agreed with me and checked me out. I was always told "you're too skinny" - until 60 pounds later when I'd FINALLY reached maximum capacity, and could apparently have it taken into consideration. It then took another painful year to find a DIFFERENT doctor who was willing to entertain the possiblity that I had endometriosis as well, and I had a lap done in December '07 for that too. If only I'd known about the endo before spending 7 months in hell doing 5 unsuccessful rounds of clomid..... well, who knows?? I guess my lesson to those who are reading this is - if you think you have PCOS, start eating now and packing it on so they take you seriously! No, just kidding! My point is - you know your body, and if you think something is wrong, don't let any dip$hit doctor tell you otherwise. I kept telling the doc that dx'd the PCOS that my periods were still excruciating, and that my mom and sister have endo, but all he was willing to do was Rx a ridiculous amount of narcotics to subdue my monthly pain. So for that and so many, MANY other reasons - I moved on....again. Sometimes you just gotta keep on searching until you find someone that will listen.
Update: Since January 2007, I have done 7 months (5 cycles) on clomid, during which I contracted mono, I've had 6 ovarian cyst ruptures (3 during the clomid cycles), 2 laparoscopies, 4 chemical pregnancies/miscarriages, 2 failed IUI's on injectables, a failed IVF that ended with a horrible infection, and recently another IVF in March '09 that ended in one of the chemical pregnancies. I have also been diagnosed with asherman's syndrome - a rare affliction where scar tissue grows inside the uterus. I am currently in daily pain and have been told it is due to my adenomyosis, where endometrial tissue grows through the muscular wall of the uterus. It has been recommended that I have a hysterectomy, but I'm about to schedule my 3 lap as a temporary fix til I can come to terms with the hysterectomy. Not sure if I'm going to try again afterwards. Surgery should be sometime in June '09.
As far as "about me" aside from this all consuming trying to conceive game... I enjoy anything involving plants - growing them, being around them outdoors, eating and sharing the fruits of my labor. I have a large garden (which I maternally grow mostly from seed every year) and over 50 houseplants that are my children, as well as my adorable dog Bijou (see my photo) and my cat Nikita. I also love to cook and beat my husband in scrabble. I enjoy long walks on the beach... just kidding - I mean I do really enjoy long walks on the beach, but this is starting to sound like a personals ad! :o)
P.S. - If any of you ladies have any plant questions, I'll be happy to see if I can help (I'm emailed by my friends and family all the time w/questions). I'm not pretending to know the answer, but I do know that I have a ton of plant books that I could look it up in - just send me a personal message :o) [Less]
Funny, even though I had surgery for a cyst at the age of 16 and several ruptures in my early 20's, and horrible periods.... it still took that long to find a doctor who finally agreed with me and checked me out. I was always told "you're too skinny" - until 60 pounds later when I'd FINALLY reached maximum capacity, and could apparently have it taken into consideration. It then took another painful year to find a DIFFERENT doctor who was willing to entertain the possiblity that I had endometriosis as well, and I had a lap done in December '07 for that too. If only I'd known about the endo before spending 7 months in hell doing 5 unsuccessful rounds of clomid..... well, who knows?? I guess my lesson to those who are reading this is - if you think you have PCOS, start eating now and packing it on so they take you seriously! No, just kidding! My point is - you know your body, and if you think something is wrong, don't let any dip$hit doctor tell you otherwise. I kept telling the doc that dx'd the PCOS that my periods were still excruciating, and that my mom and sister have endo, but all he was willing to do was Rx a ridiculous amount of narcotics to subdue my monthly pain. So for that and so many, MANY other reasons - I moved on....again. Sometimes you just gotta keep on searching until you find someone that will listen.
Update: Since January 2007, I have done 7 months (5 cycles) on clomid, during which I contracted mono, I've had 6 ovarian cyst ruptures (3 during the clomid cycles), 2 laparoscopies, 4 chemical pregnancies/miscarriages, 2 failed IUI's on injectables, a failed IVF that ended with a horrible infection, and recently another IVF in March '09 that ended in one of the chemical pregnancies. I have also been diagnosed with asherman's syndrome - a rare affliction where scar tissue grows inside the uterus. I am currently in daily pain and have been told it is due to my adenomyosis, where endometrial tissue grows through the muscular wall of the uterus. It has been recommended that I have a hysterectomy, but I'm about to schedule my 3 lap as a temporary fix til I can come to terms with the hysterectomy. Not sure if I'm going to try again afterwards. Surgery should be sometime in June '09.
As far as "about me" aside from this all consuming trying to conceive game... I enjoy anything involving plants - growing them, being around them outdoors, eating and sharing the fruits of my labor. I have a large garden (which I maternally grow mostly from seed every year) and over 50 houseplants that are my children, as well as my adorable dog Bijou (see my photo) and my cat Nikita. I also love to cook and beat my husband in scrabble. I enjoy long walks on the beach... just kidding - I mean I do really enjoy long walks on the beach, but this is starting to sound like a personals ad! :o)
P.S. - If any of you ladies have any plant questions, I'll be happy to see if I can help (I'm emailed by my friends and family all the time w/questions). I'm not pretending to know the answer, but I do know that I have a ton of plant books that I could look it up in - just send me a personal message :o) [Less]
Interests:
endometriosis, Ovarian Cysts, adenomyosis, hysterectomy, PCOS, TTC, Asherman's Syndrome
1/26/09 - CD1
CD 2 - started follistim @ 75 and lupron @ .05 and did first acupuncture treatment
CD 3 - CD 7 continued at same doses (u/s on CD 6 - showed many littl...
I don't know why I feel like this second round of injectables if affecting me so much more than the first. The cramps are really getting to me, and after only 3 days ...
The vet seems to think maybe she had something in her throat that night and it was an isolated incident. If it keeps happening, obviously we will resort to the explorator...
Weight Tracker Stats
Start weight:
209.0 lb
Weight change:
Lost 3.5 lb
Current weight:
205.5 lb
Goal
Goal weight:
160.0 lb
% Goal Complete:
7.1%
% Time Complete:
Goal tracking ended.
Days left:
Goal tracking ended.
12/12
You're in my thoughts all the time, but especially today. So sorry for your loss my thought are with you at this difficult time
11/11
I'm so sorry. I went through this in May after a surprising spontaneous pregnancy...sending comforting hugs your way...
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