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spade22

06/12

Did any of the doctors you saw go over the stress test results with you in detail? I just got my result over the phone. What I have been trying to find out is how accurate the values are at high HR because I have read that the calculation tends to over correct (gives higher values than they actually are). I think it depends on how much experience an EP has with this.

spade22

06/12

My "resting" QTc values have been in the borderline range - 460, 471, 455 and another value in the borderline range but I wasnt told what it was (I overheard someone talking outside my door and thought I heard 480 though but not sure). My EP told me that any time someone has a borderline value, they need to do further tests/medical history because it "may" be LQTS - 2 people in 100 will have a borderline QTc value but only 1 in 5000-7000 people will have LQTS so most often its not. Unfortunately, I was told my stress test results were abnormal and my QTc increased to over 500 which is a red flag. If yours didnt increase or got shorter, that is a very good sign that you do not have this. Also, if there is no family history of this, then you are pretty safe.

spade22

06/12

Right now I feel like I am stuck in limbo though - based on clinical symptoms, it appears I have some variation of this but.......I also know that there are errors involved in the calculations etc. which sounds like what happened with you (someone with a lot of experience got different values from your primary doc). Were you originally seeing an EP?

spade22

06/12

Well I'm glad to hear that one of the best does not believe that you have LQTS - I'm sure that this is based not only on your QT intervals (and other findings on the EKGs) but also on your and your family symptoms (or lack thereof). I understand the anxiety - are you taking anything to help with that? I take Xanax as needed for panic and that is very helpful. My doctor/genetics counselor recently got clearance from my insurance company to get the testing done. It costs about $5500 and takes 7-8 weeks. Based on my QTc values and stress test result which was abnormal, I have been told I have a high chance of having one of the genetic variations of LQTS.

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