"I ended up getting the genetic test done.. it came back negative, and the doctor says my qt values are fine, so I don't believe that I have long qt. I saw Dr. Spencer Rosero in Rochester, NY who is a specialist in long qt. When he measur..."
Star3851's Profile
Are you sure you want to delete this personal page?
Profile
Status:
...
About Me: Female, member since May 2012
You haven't updated your status yet!
May 25, 2012
"
Well, somehow my Electrophysiologist on the paper for genetic testing put that my QTc was 499. I was never informed of this and called to find out what the deal was. The nurse said he had read it off of one og my previous EKGs. Now I a..."
May 25, 2012
"Well, somehow my Electrophysiologist on the paper for genetic testing put that my QTc was 499. I was never informed of this and called to find out what the deal was. The nurse said he had read it off of one og my previous EKGs. Now I am ..."
No journal entries
No photos
06/12
Did any of the doctors you saw go over the stress test results with you in detail? I just got my result over the phone. What I have been trying to find out is how accurate the values are at high HR because I have read that the calculation tends to over correct (gives higher values than they actually are). I think it depends on how much experience an EP has with this.
06/12
My "resting" QTc values have been in the borderline range - 460, 471, 455 and another value in the borderline range but I wasnt told what it was (I overheard someone talking outside my door and thought I heard 480 though but not sure). My EP told me that any time someone has a borderline value, they need to do further tests/medical history because it "may" be LQTS - 2 people in 100 will have a borderline QTc value but only 1 in 5000-7000 people will have LQTS so most often its not. Unfortunately, I was told my stress test results were abnormal and my QTc increased to over 500 which is a red flag. If yours didnt increase or got shorter, that is a very good sign that you do not have this. Also, if there is no family history of this, then you are pretty safe.
06/12
Right now I feel like I am stuck in limbo though - based on clinical symptoms, it appears I have some variation of this but.......I also know that there are errors involved in the calculations etc. which sounds like what happened with you (someone with a lot of experience got different values from your primary doc). Were you originally seeing an EP?
06/12
Well I'm glad to hear that one of the best does not believe that you have LQTS - I'm sure that this is based not only on your QT intervals (and other findings on the EKGs) but also on your and your family symptoms (or lack thereof). I understand the anxiety - are you taking anything to help with that? I take Xanax as needed for panic and that is very helpful.
My doctor/genetics counselor recently got clearance from my insurance company to get the testing done. It costs about $5500 and takes 7-8 weeks. Based on my QTc values and stress test result which was abnormal, I have been told I have a high chance of having one of the genetic variations of LQTS.
Not a member of any community
No Trackers
No Tickers
Add this user as a friend
 | ||||
|
Remove
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker. | ||||
