"Hi - sorry to hear of your daughter's IBD problems. I have had PanCrohn's Colitis for some 42 yrs and had my first resection (a right hemi-colectomy) 2 yrs ago, having more or less kept the disease under control by various medications., ..."
lizziecee's Profile
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About Me: Female, 77, Plymouth, member since Mar 2003
I have had Crohn's for some 38 yrs now, dx at age 26, now 63. Got breast cancer in 2003, had WLE, total axillary removal, but no further spread to organs or bones. Live an isolated life in an old Napoleonic Fort in South East Cornwall, England, on the waters of Plymouth
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Sound - wonderful sea views of naval frigates, destroyers, submarines from the nearby Devonport naval base, plus yachts (got the Transat race from Plymouth to the US this weekend just outside our lounge windows) and leisure sailing boats and fishermen catching local sea bass, pollack etc.
Love travelling, especially to the USA where I have good friends in Omaha and Tampa, that I met when my husband and I retired to Spain in 1985 - we have all repatriated to our home countries. Quite a gourmet cook, having won two national competitions for my cakes this past year. Love people, interesting conversations, a political junkie and avid reader. [Less]
Love travelling, especially to the USA where I have good friends in Omaha and Tampa, that I met when my husband and I retired to Spain in 1985 - we have all repatriated to our home countries. Quite a gourmet cook, having won two national competitions for my cakes this past year. Love people, interesting conversations, a political junkie and avid reader. [Less]
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Digestive
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Dec 07, 2011
"I have had Crohn's for 42 yrs now - dx when I was 24 yrs, now 67! I was on mtx tablets 25 mg weekly, then 25 mg injections (done at home weekly), but after having some serious flares and surgery (right hemi-colectomy) 3 yrs ago, I was pu..."
Mar 03, 2011
"Hi Steven
first of all...calm down and forget about rectal cancer!! Very unusual in someone your age.
I have had Crohn's for 40 yrs and still alive...but it is very debilitating to live with.
It could be you are not metabolising..."
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03/12
Hey Lizziecee I wanted to thank you on this information that u posted. My nephew was dx with Crohn's Disease in 2011 at the age of 14. but unfortunately the meds. he has been on isn't helping him & it's getting worse it's spreading all though his Esophagus, stomach, Digestive track & Rectum. the next step is Chemotherapy on Methotrexate I was pretty unsure & then when I ask how long would he be on this Treatment the doctor stated "FOREVER" now me being a Certified Medical Assistant I know that when ur WBC is low ur body is septic to various infections & thats my worry but before he starts Chemotherapy we have two doctors appts. for 2nd & 3rd opinion to see what other remedies are out there for Crohn's Disease knowing that there isn't a Cure & Methotrexate is NOT FDA approved.
05/11
I'm sitting in the hospital with my mom who has crohns and who just had a masectomy. Your post about your experience with chemo as a crohns patient is exactly the kind of info we are desparately looking for right now. I cannot thank you enough. God bless you.
03/11
Thank you for being so informative and sharing your story. I'm still learning about Crohns disease (dx 5 yrs ago) & have been told that I need a resection done...now. I'm very scared and wondering what my future holds. Thanks for being a positive person. I'm sure I'm not the only one who appreciates your courageous attitude.
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