"Have you looked into all the Periodic Fevers. Hyper IgD or Famila Mediteranian Fever or others. My daughter was diagnoised in June with PFAPA . She is 9 now had fevers since 10 months. Hang in there It took many doctors and many tests b..."
I am not sure if anyone suggested this, but even though the FMF tests came out negative, you can make a test: give your child Colchicine daily and see if there are any changes. Ask the dr. to write you a prescription and if it works, just keep taking it. I know cases which were not diagnosed "oficially", yet have been diagnosed based on the symptoms before and after starting to take the medicine.
Julian ALWAYS complains of chest pain too. I hope the prednisone will help. It usually makes an increase in appetite too. I am sure the test will be fine, I think the painis from the inflammation in the chest cavity. Good luck! I took the boys to visit their dad for a summer visit, so I always worry more about Julian especially since his father and I never agreed on his medical conditions. We are divorced and he lives in Illinois. Julian was not feeling well during the past week so I am anxious.
Keep me posted and good luck, I know you will see a great improvement in her with this medicine.
Julian has taken several doses of prednisone, but his latest succesful therapy is three days of 20mg twice a day then stop. This is the ONLY thing that stops a really bad attack, like if he has been throwing up for more than two days. As for side effects, there are many but in short term uses, the risks are less, he has experienced some weight gain, irritability, and we have recently discovered that his puberty has been delayed probably due to prednisone, but also could be from the colchicine therapy. I will say his side effects to date have been minimal for the relief and "normal" life he gets from the prednisone, so for us it is really worth it. He has used it since age 2 off and on, but really used on a regular basis since age 6 and we probably take it about once every couple of months.
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