MedHelp - Medical Information, Forums and Communities

Leave a Note | Send Message |

Report

Status:

is ...

Comment

About Me: Female, IN, member since Oct 2012

Age 67 - see HCV history below....went on 6 months of solavdi/riba (march-sept. 2014) and am now HCV free.  Was on the transplant list, still am (see the status below) but docs telling me that I am doing so good liver wise that if I continue in this direction they will ... [More] remove me from the transplant list....decision to be made sept.2015.....keep your fingers crossed for me.
..................................
66 - HCV - HVL 100M/++ Genotype 1 / Meld 13 / ESLD / Stage 4 w/decompensation, level moderate.  On TP list. Did 6 mos. of Sovaldi/Riba and they tell me I am HCV free.  Am a Writer/Artist and a perpetual Optimist.  Love music...was in a band...a couple really and taught dance...  Am a constant reader....Since childhood my mind never sleeps even when the body does, sleep to me is a waste of time.    I love, love, love the ocean, traveling, exploring, Life, puppies, pandas and horses and of course my family and friends.

Have never met a stranger.... like meeting people and learning about them...enjoy their stories....if you listen you learn so much.       Love open thinkers who believe that just by believing all is possible.     "Thought transcends matter".......i.e., therefore......positive thoughts equal the strength of the will to transcend reality".

Docs tell me I am HCV free after 25 years and dozens of protocols.   I was offered a liver in October and due to a folly of day...was unable to get to the hospital....had to meet with the head surgeon of the transplant unit a week later.......when he came in the room he asked where the patient was.......I said it was me.......after talking to me for about 15 minutes he did an exam and then looked at my file and said I shouldn't have even been called for the tp.

That the tp unit didn't have the updated labs, so they made the decision based on my MELD that had been 18 when on Sovaldi/Riba..... but the updated labs indicated it was now 10.     He said he was shocked when I said I was the patient because I was bubbly,had normal coloring, eyes were clear, physically active to the point that was surprising to him...that I clearly had no brain fog from the questions and responses I had peppered at him after he talked to me.  The fact that I was independent, driving and working part-time plus being a full time grandmother.

He said he was going to keep me on the tp list but list me as inactive for the time being but would confer with my hepatologist every 3 months and watch my MELD scores and other tests that I would be having.  I saw my hepatologist on Monday of this week (12/1) for a upper GI and he said I had no varices and all looked well and he said to me...you know...you really might be able to turn this around.... So all you can is hope and believe.  Wish me luck.  Stranger things in life have happened. Think positive thoughts...erase all negativity from your minds even in the most troublesome days....negativity invites bad things in to your mind and body.   Positivity.....real positivity plus passing it forward and helping others will bring you rewards and peace.
[Less]

Interests: HCV, Cirrhois, ESLD, transplant, Hepatitis C, Nutrition, Thyroid Disorders

Best Answers: 4

Top Answerer:

Hepatitis

MedHelp

Legal

Support

The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.

Full Site

By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.



	Remove Are you sure you want to delete your ? You will no longer be able to add new data to this tracker. Cancel Remove

Report as