"I would find a Rheumy that can get you in sooner than six months. You may also want to consider going to a Gyno. You could have endometriosis or something else that needs attention. You sound like you have some sort of autoimmune diso..."
Joni686's Profile
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About Me: Female, 60, Tomball, TX, member since Apr 2008
I had a very busy life and was living my dream until June of 2007. In June I took a week off work and the first three days all I could do was sleep. I knew that wasn't like me but my fiance' said it was probably because I was just worn out from work and needed the res
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t. I admit, I was and still am at heart, a workaholic. I went back to work after that week and the month of July was to say the least, torcher. It started with extreme fatigue, then confusion, (I couldn't remember names or make complete sentences at times, still can't) then the pain appeared, then the swelling and dizziness.... Oh my, the dizziness! By the end of July I couldn't make it to work anymore. I could only make it from my bed to the couch. I couldn't even stand long enough in the kitchen to make coffee. Eleven months later, many bad doctors along the way, and now finally a few very good ones and I am told I have Fibromyalgia and Lupus. My ANA is very high 1:1280 and the symptoms too. Today my job is the most difficult one I have ever had in my life. I work every day at having a good additude and keeping positive (I do slip at times) and I hope and pray that by taking my meds, pushing myself but also being patient with myself and others that I will be able to do more than just feel like I am trying to get through the day. I used to wish I could be home more. Be careful what you wish for. As for me, this is temporary. One day I will look back and hopefully see that I was strong through this and be proud. One day I will feel the energy to do things again. I look forward for that day. I am thankful for this laptop because I haven't been able to get online hardly at all. Now I can be online while laying down.
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Gastroenterology, Chronic Fatigue Syndrome, Swelling lymph glands, Pain Pain Pain !, autoimmune, lupus, Fibromyalgia, dizziness, Sjogren's Syndrome, herniated disc repai
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, Low back pain, lower abdomen pain, pinched nerve, sleep, fatigue, chemo, Arthritis, autoimmune disease, Digestive Health, Acid Reflux/GERD, Heart Health, arrhythmias, High Blood Pressure/Hypertension, Pain, Back pain, Chronic Pain, Sleep disorders, Restless Leg Disorder, Allergies, Insomnia, Weight Management, Diet and Nutrition, Exercise and Fitness, weight loss surgery, Systemic Lupus Erythematosus, irregular heart beat, Mitral valve prolap
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Best Answers: 2Top Answerer:
Autoimmune Diseases
Infectious Diseases
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Sep 24, 2014
"I'm just coming in on this conversation but it has help me not feel so alone tonight. I have been taking Tramadol for about 6 weeks and had a disc worked on. Feeling better but now going through withdrawals from the Tram. I never take..."
Sep 28, 2011
"I haven't been on here in almost a year but I am here if you need to talk."
Today was emotional and difficult. The two puppies we got 4-5 months ago are wonderful. Sasha is adorable and sweet and loves to just aly in my lap. Bailey is energetic...
I haven't made a journal entry in some time. Sometimes when I feel really bad I just don't want to talk to anyone, not even a journal and other times when I feel ...
Well, today my Rheumy who has been calling my disease a Mixed Connective Tissue Disease finally told me I have Lupus. She wants me to start Cellcept which is a chemo type...
06/11
Hi Joni686-- I haven't checked in to the forum for a while -- my mom broker her hip! Hope you're feeling better these days. I've been in Houston recently to a Urology specialist. Would you mind telling me the name of the cardiologist you like in Houston? I have a congenital heart condition and I may want to consult with someone in Houston. My youngest grandbaby is in Hou - 1 year old! Best, minmtn
01/11
Just a quick note to say hi! What a coinceindence that your daughter's name is Jennifer. That's what I go by. I hope this note finds you feeling okay. I was curious how old you were when you were diagnosed with the "party package" lol. It started for me at 30yrs, but I believe it was there before and I just fought it. My intial symptoms were extreme migranes, dizziness(passing out because Blood pressure drops low, hair loss, joint pain). What were your inital symptoms? Having all this it is hard to figure out whats causing what. My acceptance level is better, but still struggle during flares. As you stated my life too got turned upside down. Disbelief from drs and friends makes those who face this even more challenging. How do u handle all of it? Any words of wisdom? Thx, Jennifer
01/11
Just a quick note to say hi! Hi Joni, my name is Jennifer and I am kinda new to this site, not new to the rollercoaster ride to get diagnosed with Lupus, Fibro, Sjogren's. Was wondering if we could chat. Some of experiences seem similiar. Thanks, Jennifer
10/10
Just a quick note to say hi! I'm so glad you are back. I worry when I don't see you. I know what you mean. I too was out there trying to figure all this stuff out and was needing help.
The pic of you and your husband is precious. You made such a beautiful bride. I pray you are feeling well these days. Overall, I'm doing good. I've had trouble w/ a cough, but it's looking like acid reflux (easy fix) and I've had muscle jerks (especially during the night) - don't know what to think about that. Can't complain too much :)
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