"If your scans are negative (assume you have had ultrasounds and a CT) then get a new GP but hopefully your rheumatologist can help. They generally look at the whole body. In the mean time try eliminating gluten from your diet and see i..."
TrudieC's Profile
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About Me: Female, 60, Windsor, ON, member since Apr 2008
As the Co-Community Leader of the Arthritis forum I am dedicated to helping others navigate their health issues while getting answers for my own problems too. I'm also the Co-CL of Healthy Cooking where I get to share my cooking obsession with others. I am the mother
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of a grown son, single again, and still trying to figure out where my life is headed.
I had surgery June 6/08 to remove a cluster of multiple cysts that was grapefruit sized and had bled together from my right ovary. Because of my previous bowel surgeries my gyn took a general surgeon in with him in case there were problems with my ileal pouch or the scar tissue. We intended to do a total hysterectomy because of the risk of surgery to me but because scarring was so bad they only removed the cyst, the right ovary and tube using a vertical cut. Very nervous about future issues with remaining ovary and uterus. Looks like an ablation is in my future.
When I was 21 I was diagnosed with Ulcerative Colitis and after suffering for 10 years my bowel perforated and I required emergency surgery to remove my large colon. A year later I had a pelvic pouch created at Mt. Sinai in Toronto and have had great success with that. My son has now been diagnosed with UC.
I am in the midst of finalizing my diagnosis of Lupus and am being treated with Plaquenil. I am seeing results but we are trying to solve my iron deficiency anemia, pelvic pain and neurological issues so we can determine the next stage of treatment. Glad that I am having more good days than bad but really want to get answers so I know what I am dealing with. Rheumatologist just added fibromyalgia to my list.
I work in the software industry. Cooking is my passion and I also love to do stained glass, read and take bubble baths! [Less]
I had surgery June 6/08 to remove a cluster of multiple cysts that was grapefruit sized and had bled together from my right ovary. Because of my previous bowel surgeries my gyn took a general surgeon in with him in case there were problems with my ileal pouch or the scar tissue. We intended to do a total hysterectomy because of the risk of surgery to me but because scarring was so bad they only removed the cyst, the right ovary and tube using a vertical cut. Very nervous about future issues with remaining ovary and uterus. Looks like an ablation is in my future.
When I was 21 I was diagnosed with Ulcerative Colitis and after suffering for 10 years my bowel perforated and I required emergency surgery to remove my large colon. A year later I had a pelvic pouch created at Mt. Sinai in Toronto and have had great success with that. My son has now been diagnosed with UC.
I am in the midst of finalizing my diagnosis of Lupus and am being treated with Plaquenil. I am seeing results but we are trying to solve my iron deficiency anemia, pelvic pain and neurological issues so we can determine the next stage of treatment. Glad that I am having more good days than bad but really want to get answers so I know what I am dealing with. Rheumatologist just added fibromyalgia to my list.
I work in the software industry. Cooking is my passion and I also love to do stained glass, read and take bubble baths! [Less]
Interests:
cooking, Stained Glass, reading, decorating, cats, Arthritis, Digestive Health, Heart Health, Cholesterol, Pain, Chronic Pain, Thyroid Disorders, Weight Manage, Migraines, Weight Management
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, Diet and Nutrition, Women's Health, Menopause, Colitis, Fibromyalgia, Headache, Acid Reflux/GERD, Anxiety, Depression, Nutrition, Restless Leg Disorder, Beauty, internet, Dogs, Healthy Eating, Back pain, autoimmune disease, lupus, emotional health, pet health, Sleep disorders
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Best Answers: 18Top Answerer:
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And so it begins again. Looks like another cyst or mass on my other ovary. If only they'd done the hysterectomy last round...
12/12
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Today I started my prgoram with a stress and health coach. I am taking Skinny Fiber and using her coaching plus my gymn membership. Minimum of 45 pounds to lose in 6 months and will change my habits so it stays off.
09/12
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Jul 30, 2012
"This is a common issue with fibromyalgia. When I started on Lyrica it went right away. If you do decide to try Lyrica be aware you will feel very sedated for the first couple of weeks but that goes away. Insist on starting on the lowe..."
Jul 07, 2012
"I found tremendous improvement in my fibro once I got my depression under control (I take Remeron). I would also recommend Trazadone like Sara mentioned - it does help me sleep. Sleep and some kind of activity are the best things you c..."
What random acts of kindness have you performed or received? Any ideas on acts for others to do?
"I expect to pass through life but once. If therefore there be an...
How much change can one person handle in such a short period of time?!!! Since December 3rd I experienced a marriage separation, moved back to my home town, found and sta...
It's been a while since I've been here. The last 3 months have been quite a whirlwind. I lost my job, separated from my husband, moved 2.5 hours away back to my ...
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Weight Tracker Stats
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218.0 lb
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Current weight:
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Weight Tracker Stats
Start weight:
218.0 lb
Weight change:
Lost 7.4 lb
Current weight:
210.6 lb
Goal
Goal weight:
190.0 lb
% Goal Complete:
26.4%
% Time Complete:
Goal tracking ended.
Days left:
Goal tracking ended.
05/14
Just a quick note to say hi!
Did you ever find out what that was from the sun. I have the same thing, I have
RA too.
09/13
Just a quick note to say hi! Oh my goodness, you are the first person I have read about that had the same response as me to Plaquinil. Your post from 2009 said "With the plaquenil I saw a big reduction in brain fog, tiredness and flu like feeling and big increase in ability to concentrate. ". THANK you so much for your post, your words are exactly how I feel. I have been on Plaquinil for 3 months now. Makes me feel g od to see another experiences the same effect. Thanks again.
Sandy Rizzo, ***@****
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