"I also have foot ache/ pain as well as hands. I have tried using Ben Gay at night and when the pain is intense and it seems to help. I have also started taking a mix of glucosamine/ condroiten (spelling) this helps, but does not elimin..."
crswin's Profile
Are you sure you want to delete this personal page?
Profile
Status:
...
About Me: Female, 45, NC, member since Aug 2008
I will try to make my experiences of the past 8 years as brief as possible. 8 years ago, I was a healthy 25 y/o teacher. In the middle of teaching a class I experienced right facial numbness, confusion, and difficulty speaking. Over the next week, my symptoms progres
...
[More]
sed to right facial droop, slurred speech, and loss of sensation on my right side. While in the hospital, I had MRIs (with and without contrast), lumbar puncture, and various other tests, which all came back 'normal'- with the exception of a slight elevation of proteins in the LP- doctors said not enough to be concerned. I made a full recovery within 2 months. Since I was on birth control at the time (never smoked), docs said that their best guess was that it was a TIA, but there was no evidence to support it. They mentioned MS at the time, but dismissed it.
Two years later, I had a bout with blurred vision. I went to the eye doc who dilated my pupils and said that I had optic neuritis. He sent me for an MRI- the results were normal. He thought MS, but dismissed it, stating that it must have been a virus. I made a full recovery.
2 Years later, I had a bout with migraines that lasted 1 month. I never went to the doc- was afraid to be sent for an other run of test just to be told- unknown.
In July 2008, I had a deep, aching pain in both legs. The pain got so extreme within a few days that I made my husband take me to the ER. There they did a d-dimer test (-) to rule out blood clot, gave me 2 vicodin, and sent me home.
The next day I went to my GP- who also mentioned MS- with intense pain in both legs accompanied my uncontrolled movement of both legs- looked like I was dancing. He did a spine X-ray, leg doppler, rheumatoid panel, and other blood work
(all -). I then was sent to a neurologist, with the same symptoms. He gave me neurotin and also mentioned MS. I had a VEP, MRI (brain and cervical spine)- all were normal (the MRI showed some bumps on spine, but doc said 'that is not anything to worry about'. Once I got on the neurotin, the leg tremors and pain in both legs stopped within 2 days. However, the pain then was in the left side (lower back, and leg- often settling in the hip, and knee) and right neck, head and behind eye. I also experienced extreme fatigue and confusion- to the point that I could not remember which side of the road to drive on- scary moment. Since all of my tests came back 'normal', docs have said that it is likely not MS. The doctors have said that Lyme disease and virus are other possibilities, but test offer no support here.
For the past year I have had debilitating fatigue with joint pain and weekess in my wrists, hands, ankles and feet. Recently my doc spoke with me about CFS. I am not trying aerobic exercise as a therapy to help alleviate this fatigue. [Less]
Two years later, I had a bout with blurred vision. I went to the eye doc who dilated my pupils and said that I had optic neuritis. He sent me for an MRI- the results were normal. He thought MS, but dismissed it, stating that it must have been a virus. I made a full recovery.
2 Years later, I had a bout with migraines that lasted 1 month. I never went to the doc- was afraid to be sent for an other run of test just to be told- unknown.
In July 2008, I had a deep, aching pain in both legs. The pain got so extreme within a few days that I made my husband take me to the ER. There they did a d-dimer test (-) to rule out blood clot, gave me 2 vicodin, and sent me home.
The next day I went to my GP- who also mentioned MS- with intense pain in both legs accompanied my uncontrolled movement of both legs- looked like I was dancing. He did a spine X-ray, leg doppler, rheumatoid panel, and other blood work
(all -). I then was sent to a neurologist, with the same symptoms. He gave me neurotin and also mentioned MS. I had a VEP, MRI (brain and cervical spine)- all were normal (the MRI showed some bumps on spine, but doc said 'that is not anything to worry about'. Once I got on the neurotin, the leg tremors and pain in both legs stopped within 2 days. However, the pain then was in the left side (lower back, and leg- often settling in the hip, and knee) and right neck, head and behind eye. I also experienced extreme fatigue and confusion- to the point that I could not remember which side of the road to drive on- scary moment. Since all of my tests came back 'normal', docs have said that it is likely not MS. The doctors have said that Lyme disease and virus are other possibilities, but test offer no support here.
For the past year I have had debilitating fatigue with joint pain and weekess in my wrists, hands, ankles and feet. Recently my doc spoke with me about CFS. I am not trying aerobic exercise as a therapy to help alleviate this fatigue. [Less]
You haven't updated your status yet!
Jul 31, 2010
"2 of my sisters and I have this. We deal with 'flare ups' by taking small naps- only when absolutely necessary and trying to stay active. Intense exercise will wipe us out for days, but staying active helps. Swimming and Yoga help me,..."
Jun 07, 2010
"Thank you for posting this. I counted 18 that apply, and I was conservative on checking off the items. I will certainly mention this to my doc at my next appointment, which is at the end of June. I live in a high risk Lyme area where ..."
No journal entries
No photos
06/10
Just a quick note to say hi! I too was diagnosed with MTHFR. My medical history is extensive. I would like to speak with you if thats ok.
04/09
Just a quick note to say hi! Welcome to the dysauto mommunity. Feel free to ask any questions. I was diagnosed with POTS in November 2008 (with fainting - "vasovagal syncope").
 | ||||
|
Remove
Are you sure you want to delete your ?
You will no longer be able to add new data to this tracker. | ||||
