"Hello,
I went and had it on yesterday. It was my 3rd one in 3 years. I was a little anxious, but the radiologist and the tech have come to know me now since I have been there for the last 3 years. I didn't wait around for the cd becau..."
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Oct 25, 2010
"Thank you for your thoughts. I had the mri today. Thanks for taking the time to care! "
Sep 11, 2010
"Hello Maria,
I am sorry that you are going through this. If you are in a lot of pain and you still have no answers, then it may be worth a try to go with the steroid treatment. At this point, you have been through quite a bit and I ca..."
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01/10
You deserve a big bear hug! I am sorry about the lack of diagnosis. My journey took 4 years, unfortunately. I hope yours is shorter!!
Sending you the best of wishes for a great 2010.
Hugs,
Ren
10/09
second installment of previous....It may not be a case of finding a cure, so much as finding a way to deal with it. I used to suffer panic attacks when symptoms occurred and that made it worse. Something that helps for pain is called 5-HTP. Also, try to find a supplement called Vita-Thion (i don;t know if you get it in your country) and Bovine Colostrum (an underrated supplement). Phew...there is so much to write about...but that is a start. Keep as well as you can and try to accept the down days for what they are (FOR NOW- until we find answers) and know that it will pass.
All the very best...
10/09
Hi there,
just a note to say you are definitely not alone. I have my own studied and informed opinion about EBV. yes, it does cause all of these syptoms and the crux of the matter is this - it affects different people differently. It finds a weakness and attacks that. the liver is affected on a secondary level - affecting inflammation. one enzyme the liver produces is involved with muscular function - phosphokinase. as yet, i am still studying the link but hope to identify it soon. neurological symptoms may be influenced by an imbalance in liver enzymes.
I have suffered attacks similar to yours most of my life after EBV and at one stage could not get my muscles to relax.
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