"I have clinically been diagnosed with Hypermobility but the test results are not back yet from the geneticist and it's strongly suspected that I have vascular, or least some very big crossover symptoms. I've had several organs rupture in..."
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About Me: Female, irvine, KY, member since Dec 2008
I live on a farm in Eastern Kentucky with my two children and husband. I own a copywriting business and am a full time writer. I met my husband in Wales where we were both attending graduate school. He's from England and I like to think he's the best souvenir I ever bro
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ught home. I've been diagnosed with Chiari Type I Malformation and Vascular Ehlers-Danlos Syndrome. I also have been diagnosed with chronic migraines and epilepsy but am no longer sure those diagnoses are accurate. Now I am thinking they are symptoms of the Chiari.
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we have found, at least, that when the husband pulls up on my head the pain there is alleviated for a few seconds. Wish it helped everything else.
04/12
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Jan 03, 2015
"They also put me on antibiotics because my white blood count was up and they were afraid of meningitis. They didn't want to do a lumbar puncture since I already had a headache and that can make it worse. (Been there, it was terrible.) Si..."
Jan 02, 2015
"I have great mobility in my neck. Came out of surgery being able to turn my neck with ease.Even the NS was impressed. I am at the hospital now, though. It's a leak. Getting ready for my blood patch. "
I finally got in to see a neurosurgeon who seemed to actually care. Instead of making me wait 3 months and having no interest in any related condition, Dr. Choutka actuall...
I figured I'd start this blog by giving my story and how I got started on this road to Chiari Malformation...
1980-1987:
For the first 7 years of my life, I was ...
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