Jan 06, 2012
"I am suspected of having Stiff Person Syndrome am as yet undiagnosed but I have many of the symptoms, I am awaiting results of blood tests and an appointment at RPA Sydney for an EMG with Prof Burke , I am seeing Dr Susan Tomlinson and h..."
Sep 30, 2011
"I have Funicular Myelitis with episodic paralysis ataxia etc etc, now it has progressed to severe myoclonus jerks at least 1 a day and I frighten the hell out every one around me, they get upset but I say this is not effecting you this e..."
Feb 27, 2009
"My journey began in October 2002, although according to my Neurologist it was undiagnosed for about 10yrs.
I was lying in bed and I was unable to move my legs, and had severe tremors so much so that I was hospitalised.
During my time i..."
