"I haven't had a physical in years. And I found out that I had/have a bladder infection so that was why my urination was so frequent. I'm prone to bladder infections, and just got over a bacterial infection in my liver, gastritis and a he..."
RoseMary6495's Profile
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About Me: Female, 27, Washington, PA, member since Mar 2014
I'm 18, and I have Biliary Atresia. Post Kasai. I honestly don't know much about my disease. I know that I'm one of the lucky ones, that most of those with this disease have had a transplant already, and that some of the ones with my disease are dead. Other than that? I
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know that its probably caused by my birthmother. She had hepatitis as a kid, due to poor water conditions, and hepatitis causes liver problems in offspring. That's all I can say. I have no where else to go and I just need help. And advice
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Allergies, alternative medicine, Arthritis, Osteoarthritis, Asthma, emotional health, Anxiety, Depression, Migraines, Pain, Back pain, Chronic Pain, Headache, pet health
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, cats, Dogs, Sleep disorders, Insomnia, Skin conditions, eczema
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May 04, 2014
"I've tried deep breathing and whatnot. But the worst part is I'm recovering from being a self injurer. When I would be stressed before I would cut and feel better, but I'm trying not to fall back into that. "
May 03, 2014
"Okay so I've been under immense stress lately and its caused some symptoms that my body has never really had with stress.
Severe back pain
Craving fatty foods
Frequent urination
Migraines
Bloating (possible weight gain, no scale..."
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03/14
Hi RoseMary -
Sorry to hear about your condition. I saw it in the Cirrhosis forum. Thought I'd send you a note instead of answering thru the Cirrhosis forum since your concerns are more specific to bile duct disease than the general cirrhosis crowd.
I have advanced PSC which has me in roughly the same shape as you (wrt lack of normal bile ducts) just via a different route. I have pretty much the same ailments as you due to the lack of bile. I'm sure your doctors must be aware of the limitation of your digestive system ... lack/absorption of fat-soluble vitamins as well as fat emulsification problems.
Feel free to contact me anytime. We who are gifted with rare diseases need all the information and friends we can get.
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