"I want to correct some things I said in my earlier post to you.
I was wrong about Benicar. Yes, it is used in the Marshall approach to beating Lyme, but it also can be used just as a treatment for Lyme because it enhances the effect..."
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Status:
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About Me: Female, UT, member since Apr 2009
I'm very, very fatigued most of the time. Off-balance at times, falling, must use a cane. Have to nap. Mentally fuzzy at times. Occasional blurred vision. Muscle twitching and cramps. Hoarseness that comes and goes. Loss of voice periodically. Frequent naps. Nee
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d more energy!! My forearms show muscle atrophy - especially from my bony elbow to mid forearm - the ulnar bone really is visible and prominent. On recent nerve conduction my ulnar nerve was not functioning properly above and below the elbow and my sular nerve conduction was nonexistent.
I have been given a clinical diagnosis of advanced Lyme disease and am on antibiotics. [Less]
I have been given a clinical diagnosis of advanced Lyme disease and am on antibiotics. [Less]
Interests:
Multiple Sclerosis, autoimmune disease, infections, Staying alive
Best Answers: 1Top Answerer:
Neurology
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Jun 05, 2011
"Lyme diagnosis is a clinical diagnosis!! That means you are diagnosed with Lyme based on your history, your symptoms etc. Labs can give insights - but they are not to be used as the sole tool for diagnosing Lyme since there can be fals..."
May 26, 2011
"Coincidentally, a Lymie just sent me a referral to a website discussing the synergy between antibiotics and non-antibiotics. Your current antibiotic, Minocine, is mentioned (as minocycline).
You can read about it at: http://www.hi..."
No journal entries
02/14
Just a quick note to say hi! Everything I read the idea of start a treatment and then do a Western blot thank you for the ideas
01/12
Just wanted to say hi and see how you are doing I am still in limbo and feel like crap but going back to 1st neuro on monday its been 4 yrs since I seen him and he is my sisters MS doc and maybe after he see's how much I have declined in the years he might come to some kind of conclusion this is my last effort I dont think I can be dismissed again and carry on with the search so I keep my fingers crossed. I hope you are doing better talk to you soon
Kat
07/11
Thank you for everything! You are woderful, like I said, any info, I will gladly take.
Hope you are feeling well.
Hugs, pam
05/11
I'm glad your status shows that you're feeling a bit better. Lyme treatment is a marathon and not a sprint, so while I hope your improvement continues, don't get discouraged if you face some backslides. Hope you are having a restful and good weekend.
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