"Hi! I understand your concerns...do you still have the eye pain? I think you can be confident that you don't have optic neuritis if you have been cleared by 3 doctors. Considering your findings on your spine MRI's, you might find it h..."
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6 years in neurological limbo and getting progressively worse...surreal to be living like this undiagnosed!!
About Me: Female, St. Michael, MN, member since Jul 2014
Jul 30, 2021
"Hi,
Sorry you are struggling and wish I could provide a positive outlook on getting a quick diagnosis, as I've experienced some of your same symptoms ..and then some! I actually presented the same way initially with the weak legs and..."
Apr 22, 2021
"I understand! I actually used to work in the Ortho Clinic at the VA in Minneapolis and although I believe the patients had great care by good doctors, it is a bit of a mess with getting proper care when you fit outside the box and Lyme ..."
And it just keeps taking!
It's taken away my balance, it's taken away strength, it's taken away muscle, it's taken away my energy, it's taken away m...
I believe I have MS...I believe the lesions are on my spine and because they have not used the highest strength MRI, they are missing them.
This is what I know which is...
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04/16
Definitely OK to pack up the winter garb!! I'm struggling along over here. I don't post too much as I feel all I have is a pile o'negativity right now. Not helpful for ANYONE. Drop me a line & let me know how you are doing. I've been thinking about you.
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