"If you decide to go..I would call the Mayo and talk to them about what is usually involved as far as testing to see what you are up against $$ wise. They are most helpful when you call with questions but if you tell them it is out of net..."
flowerfloosey's Profile
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About Me: Female, 71, sonora, CA, member since Aug 2005
I have been told by the Mayo Clinic that I do not have ms based on neg MRI's on 1.5T. I have 3 O-bands in csf not in serum and many clinical symptoms. Am trying to seek answers for my questions.
Interests:
Gardening, my grandchildren, medical research, mentoring
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Jun 11, 2009
"I went to the Mayo Clinic in Az in Feb to rule out a dx of multiple sclerosis. Since it was in my network it did not cost me anything except the trip which ended up being about 1700.00 $. I live in California so it was only a couple stat..."
Jun 04, 2009
"It is good to hear from you too! I don't mind telling you so here goes:
My level was 171
They prescribed 1000 a day high quality sublingual
I haven't had it tested again and will be doing that in the next month. They told me to test i..."
I hate to complain after so many have had such a horrible week. It was hot today..and the heat got to me. Before dinner I had a sudden low blood sugar drop like I have nev...
After reading some posts, I have a much better understanding of why the Mayo Clinic treated me the way they did. I played right into their hands with my symptoms and lack ...
After reading Lulu's post this evening..I am thankful I am alive! Sometimes I loose my focus in the middle of not feeling well and think the world revolves around me. ...
08/09
check out this link
http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/1319
MS and Statin use............
08/09
statins and ALS? that's a scarey connect-the-dot picture. I'm no fan of statins and tell everyone of the health problems they can cause, based on my own lousy experience. If you go to the heart board with this you will get Grace and the others going on the research if you want to know more. I wish you were doing better - I still think Mayo missed the mark with your dx. But I'm no doctor....... L
06/09
I'm so happy to hear you are feeling better!! Hope the B-12 vitamins continue to helping you.
06/09
Just a quick note to say hi! Just checking in to say hello, was thinking of you today as it is 5 weeks tomorrow since my knee op and I am still not back at work. It swells if I try to do too much or if I rest too long - did you have this? Sending (((hugs))) Pat x
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