I am caring for my Father in law that has this disease. Hospice says he is atypical with his disease.He was diagnosed with ALS in 2002. I have taken care of him (Primary) as well as my husband and now my son for the last 3 years and Hospice a year and a half. He has no use of his legs or hands since the first 6months. He was in a Nursing home but we brought him home In the last few months I have watched his urine change color to amber then bloody looking to normal yellow. He coughs at times. We have suction Machine but nothing else other than oxygen to help him for He has a DNR order ( do not resuscitate.)He seems to cycle ( I call it that) going from his sats being 95-98 and Blood pressure from 138/83 to 98/63. His pulse 63-83. Res.16-8. temp varies from 97.5 to 99.0 in the last weeks he is increasingly losing the volume of his voice, His pain level increasing and really seeing things that are not there and ordering us to do things( he was a farmer)that are crazy. I heard that some ALS patients can get a form of Dementia is this true?