Pain Management Center Bring down my oxycodone.

[Nighthawk56]

Hello,
To make a long story short, I have crohns disease and have had two resections in my intestines. I was seeing my doctor and after much debate convince him to put me on oxycodone short release as oppose to extended release as it went through me because of short bowel from surgery. I'm now on 20 pills a day at 60MG, 60MG, 90MG 90MG. I take it every 6 hours and it does wonderful for my crohns as I get 90% relief at the end of my last dose. I have never ever gone above it. My theory is if you take the lowest dose which for me would be 60MG I do not get 100% relief but when I get to the 90MG I get 92% relief from my pain.  I'm proud to say that I have never gone beyond that after 14 years.

Here is the problem I have been going to pain center for the last 5 years as my Dr. got scared giving me high amounts of oxycodone. At first the pain center was not happy with the amounts but try to cut me down only to see it was not helping. The pain center is now getting political pressure from all sides. The FDA, Whitehouse, and the group "PROP" The pain center told me I must cut down to the equivalent of 250MG of morphine which would be that I would need to cut myself to 10 pills which 166.67MG compared to 300MG a day.

They have already cut me 30MG of meds per day. I already feel the effect which is putting pain into my work. exercise, gardening, walking.  My quality of life is starting to be effected and I'm trying to work with them but I afraid they will go all the way to 10 which would really make life a sucky place to be. I hope to work with them to cut some out but should not have to as I do not abuse the meds and get urine test every month and lock up my meds and go to one pharmacy. I can go 18 hours with not meds and not miss the oxycodone but the pain by then is so bad. The point is I do not miss it at all but I need it for pain. Any ideas on how I can get them to feel compassion and work with me not to go that low. I really should not have to go down at all but in order not to seem like a drug person I need to work with them but I'm afraid they will go to low. Helpppppppppp

[Nighthawk56]

Thanks Vicki!! No ,I have not sent it to Pain Management forum  but I will. I tried discussing with pain center but they have been cold like they are trying detach themselves but you are correct we must continue  to talk as I need to stay on at least 15 Min but should not even have to do it as it works and I can enjoy life. I will look into implant but that does not seem feasible at this time. Thanks all for the feedback!!!

[vicki595]

If they're being forced to force YOU to decrease to 10 pills per day then THEY need to help you do that. You can be slowly tapered back, emphasis on slow...not that I agree with that! I'm getting sick of all the federal regs regarding pain med!  Everyone but the doctor is making recommendations and interfering with patient care.

Talk to the doctor at the pain clinic and maybe push for a compromise but talk about it. It's going to stress you to the max if you're worrying about your dose being cut all the time.

Did you ask anyone in the Pain Management forum about this?

[selfinduced]

Ok, I just found out the stimulator is a trail and made by St Judes hospital. Hope that helps.

[selfinduced]

Hi Nighthawk, There is this semi new procedure where they implant a device in your body that will electrically surpress pain in chronic pain patients. It is quite costly, but may be worth looking into. If your interested pm me and I'll get the particulars . So sorry your going thru this.