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Prolonged use of Fentinol

I am trying to find out some possible problems associated with use of fentinol.  My mother was prescribed fentinol for chronic pain associated with injuries sustained in a car accident.  She's been on about 175 mg in patch form for, I think, 4-6 months or so.  About 8 weeks ago, she developed inexplicable nausea, dizziness, anxiety, depression.  It got so bad, they put her in the hospital.  She underwent every test known to man, but after a week, they decided it was all in her head and put her in a psych ward for 3 days.  She improved dramatically (although she received no treatment there--they made her attend AA meetings and classes that taught you about prescription medications; why, I have no idea--how about some therapy, people?).  Anyway, they released her, even though they admitted they still didn't know what was wrong.  A week later, she was back in the hospital, worse than ever.  They found her gall bladder was impacted with stones and removed it.  She had no improvement for nearly a week.  After she finally improved a very little bit, they decided that, although they didn't understand why her health hadn't improved dramatically and they didn't know what else was wrong, she should be discharged.  Well, as of This past weekend, she's back in the hospital with inexplicable nausea again.  One doctor has decided she needs to come down off all meds--especially fentinol.  He said (but her chronic pain management physician disagrees) that prolonged use of fentinol can cause extreme nausea, curable only by ceasing taking fentinol.  Can anyone help in this regard?  Thanks!
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Sorry , dont know how to use page. can any onne tell me about the product i found on this page Withdrawal Ease@
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do you know about Withdrawal Ease@ . does it work ?
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Thanks for your response and advice.  I chose to avoid the pills and am feeling a little better each day.  
I just had a small taste of this nastiness.  My heart goes out to all of you who have to suffer through this on a much more painful and longer time.
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Take the t-3's.  Just try to space them out as much as possible.  If they don't work, ask for vicodin and spread them until they are gone and then do the wd thing.  Even though it is a 25ug/hr patch, it is still fentanyl and will make you feel like ****.  If things are starting to get better tomorrow, then you might consider just staying the course.  But, if you are still feeling horrible, then take the codeine.  It will make it last longer, but the eventual withdrawals will be much less and more bearable.
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This is my first post here, sorry I added to this one but the site wouldn't allow me ask a question, and this thread pertains to my problem.  I had a lung transplant 4 weeks ago and during my stay in the hospital (1 week), I was on a morphine epidural and then I came home on the fentanyl patch, which I was on for 3 weeks (25 mcg).  I was also on hydrocodone, but stopped taking that shortly after I came home.  This past Friday I stopped the patch and I have felt awful ever since.  After reading other posts, I realize that I was on a low dose and for a short time, but I have horrible headaches, the shakes and always feel like vomiting.  My doctors gave me a prescription for Tylenol 3's, but now I am scared to take them.  I'm just asking for experiential opinions on whether to take the Tylenol  3's or not.  Will it just prolong the symptom's?  Are my symptoms normal and about how long do they last? Thank you and I would like to say that one good thing about this experience is that it has given me a new understanding about how easy it is to become addicted to drugs.  I would have rather suffered through the pain of the incision than deal with this.
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My doctor started me on Vicodin ES, than switched me to Oxy. for a month when he realized I was going to need pain med for sometime. I couldn't stomach the Oxy, and he switched me to Duragesic 25ug an hr., immediately to 50, than a few month's later to to 75 over the period of one year. I stayed on the 75 for sometime as I didn't want to go up any higher and was trying several type's of pain relief including epidural's, physical therapy and a few more. I eventually elected to have surgery.
I immediately went down to 50 Ug against my doctors orders who said I would be better to stay on the 75's and try extending the time between doses from 72hrs to 96hrs, and than slowly move down to the 50's etc.. With the experience I had with Fentanyl, going to 96 hrs was not the way to step down. My body was already going into withdrawels by the time I reached 60 hrs., and after 72hrs. the patches do not release anymore medication, and that would be like going cold turkey every 4th day for 1 day. I didn't want to experience that almost twice a week. What I did was move down to 50's and change them every 48hrs. The first few patch changes were a little rough, but nothing I couldn't handle with my mind in such a great state. I was in slight withdrawel's, however because I was able to use a new patch after 48 hrs., it was no worse than the withdrawel's I was feeling by the 60-72hrs while I was on the 75's. After awhile of being on the 75's, I noticed that the pain relief slowly diminished from 72 hrs down to approx.48-60hrs.
I stayed on the 50's for three weeks, while spreading the time between new patches by 3-6hr increments almost every time. By the third week, I was using a 50ug patch 72 hrs, no problem. I than went down to the 25's and repeated the same procedure. It's been 1 week, and I can't believe how much better I feel. If I feel this great now, I can only imangine how I'll feel with-in 1-2 month's when I will be off everything. This scenario worked great for me, and may not be the case for anyone else. I can't say. I just wanted to give anyone out there some hope who has been on Fentanyl. I would strongly suggest NOT going cold turkey. I tried initially, without my doctor knowing but felt so bad and low, I truely had thoughts of suicide. I felt like I was going to die!!!! Peace!!
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Where do you think you will be in ten years as far as pain goes?  I know it might be hard to tell, but in general.  Do you expect you will have pain or won't you?  Deciding what you should do isn't a cut and dried decision.  Different things figure into it.  How is your skin, by the way?  When I was wearing the patch, my skin turned into hamburger.  I was allergic to the adhesive.  I have scars from them.  Fortunately, not everyone goes through that.
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degenerating disk disorder, cervical arthritis, bulging cervical disks.  all insights are welcome.  thx michael.
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It is very possible your body doesn't fair well with fentanyl.  I would say a switch to something else would be in order, besides bup.....  You haven't answered my question, so it is hard to say what you should do from here.  What happpened in two months to you is not normal.
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If you are correct, then my past abuse, or high past MMT and RAAD has changed me.  I was/am taking as prescribed, not abusing, but my tolerance has been racing up, as previously stated.  I wish what you say held true for me :(
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What I was saying with the dose is, if you have legitimate pain that calls for it, raise it.  100 ug/hr is not the highest dose allowed, not even close.  If you have pain, why suffer?  If you can honestly live without meds, then do it.  Don't go reaching for the suboxone because your dose is "too high".  Do it because you truly don't need the pain meds and want to get off.  If you truly need it, then take your medicine.  Otherwise, you will be riding a rollercoaster for some time to come.
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I take it you weren't abusing your meds at all?  Your tolerance went up that quick taking them exactly as prescribed?  The patch isn't the only option available.  What is your pain prognosis?  Where can you realistically expect to be in ten years with your pain?  The reason I ask about your tolerance is because when a person uses their meds as prescribed, their tolerance goes up very slowly.  A dosage increase every six to eight months is the norm and some even go longer.  I could talk about other options, but I would rather not here.
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I went from 50 to 75 to 100 in two months and it still has/had no effect.  From what I understand 100 mcg of fentanyl is a very high dose of pain med and I know I would race higher, based on my past.  When would it stop?  Patches up and down my arms?  I don't think, I fear, I would not be able to get enough prescribed at some point, and then be totally screwed.  End up at a methadone clinic, or what?  I was really scared.  (I still am.)  It would definitely be too late to switch to subox.  Am I wrong?
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Will find out.  I am going in late this week to discuss.  Why, do you think I should just continue higher?  Where will is stop?  What next?
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What was the deal with the patch, your doc wouldn't go any higher?
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If you want, you can email me at ***@****.  We can discuss it further, if you would like.
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I feel good...normal, first time in years.  It's weird!  I'll post more tomorrow.  Thanks for your support.  I hope you are doing well.
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Long answer, but I'll go backwards:  from fentanyl 100 back to 75, 50, b4 that 20mg oxy's x 3, b4 that hydros, b4 that anasthesia rapid detox off of methadone, before that....

Anyway, I'm at the end of day 2 on the subox, have a migraine, but doing OK, surprising, given the high level opiate use.  I felt nothing from 100mcg of fentanyl but w/d's, so I had to try something different.  It was either this, or methadone, or moving to afganastan and harvesting opium for a living!
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I just wanted to post to say hi and i miss you? how are you doing latly? email me at ***@**** okay? I would love to talk to you!
Take care my friend.
Love. erika
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What were you taking prior to the patch?  What and how much?
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Man, if I got back to clean and feel good, no way I would touch a Ty 3.  Would end up right back in the horror.  Try any other kind of pain therapy, but don't go back to opiates if you've been previously opiate addicted, IMO.  Well wishes, freezing.

By the way, I am on fentanyl patch, and I feel like **** all the time.  I'm on 100mcg.  I went off tonight, finally, and will be starting suboxone tomorrow, finally!!!  I'll let everyone know how it goes.
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Hi Emmy,

Congrats on surviving & triumphing over the devil within.  I know how much you suffered & you deserve a rousing round of applause for your fortitude.

Being a chick & all & one who gets cramps from hell such that my doc thinks I have too have endio, don't you find prescription strength anti-inflammatories helpful?  I get gastric bleeding from them but for those 1-2 days, I nibble my way thru a qt. of yogurt, plus meals, for the relief it provides & so far, no big prob.

There are some very strong ones, some made just for menstrual pain.  I was just wondering because I know how incapacitating those cramps are (perhaps not as bad as yours but I do spend 2 days with a boiling hot water btl attached to my pelvis) & those anti-inflammatories are IMHO, a miracle drug.  

Years ago, after I'd vomited blood from the anti-inflamm. & there was no way I could take them, I rec'd pelvic injections 2 days a mo.  I *think* it was cortisone, a low enough dose & they injected it near the hipbone area.  Nothing too painful or awkward & that *really* numbed me down there!

As Chezz said, you don't want to awaken the dragon lying in wait & I can tell you this because I woke mine when I fell on my ass & cracked my tailbone.  In retrospect, I should have just suffered thru it.  I'd been off about 8 T3's p. day for 5-6 wks. & took only a few for my sorry ass ;-)  But then I had the cravings & more cravings & now I'm close to back to my previous level.

Good luck Emmy & beware of the dragon for she lies in wait....

Best,

Dancin'
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Hey guys! it's emmy22. I am through withdrawals!! The physical part anyway. RLS is gone, anxiety is gone, etc. Thank you guys so much for posting to me so many times. I have one question: how long will it be where I can treat my endometriosis pain each month with tylenol 3? It is only for two days a month. Is it safe to continue to treat with those meds? They are the only thing that works. Talk to you guys later.
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Good show, Emmy! If T3's are the only thing that works, I guess you must use them. Just be aware that those two days might leave you with some renewed cravings, but I doubt if you will have any real withdrawal.

Thomas
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