I am 35 years old (female) and when I was 15 yrs old I was diagnosed with a degenerative joint condition, along with MS and a few other things (endometrosis, cluster migraine headaches, etc.). At this point, I am obviously also a chronic pain patient as I have been in extreme pain for 20 years (I do not work and am considered completely disabled; I walk with a cane, etc.). I was on Oxycodone etc from the time I was 15 till I was about 25 and then I was switched to Fentynal patches. My prescribed patch dose is 175 mcg every 2 days (so I am wearing one 100 mcg patch and one 75 mcg patch) and I take about 30 mg's of Oxycodone daily for breakthrough pain - or should I say I was. I have recently decided that I REALLY want to get off the patches, at least for a little while so I can see how much residual pain I am truly dealing with. At this point, I would rather at least TRY the pain then never know if I can do it.
I talked this over with my pain doctor and he said no, absolutely not. I spoke to my specialist (who doesn't prescribe the meds but obviously knows I take them) and also got a no and I talked to my family doc who also said no. I am determined to at least see what my life is like with out these patches and see what my pain level is like all these years later. I should add that I already see a acupuncture doc, a chiropractor, physical therapist and massage therapist.
So, over the course of the last 30 days, I went from 175 mcg every other day down to 100 mcg every day and then I cut out the daily oxy's completely. I was doing well with that and stayed at tht for a week and then because I still felt alright, instead of dropping to 75 mcg, I just went ahead down to 50mcg. I use the Mylan patches so I can cut them myself. I am in quite a bit of pain but it doesn't feel like w/d pain (or at least not all of it), it feels like my old, reliable bone and joint pain. How hard will it be to stop at 12.5 mcg? Anybody with past experience?