High Norepinephrine, High Catecholamines

[iris986]

Norepinephrine- (0-399) mine is 1089

Catecholamines- (0-699) mine is 1189

Does this indicate that i have neuroblastoma?

My endo told me i had a adrenal tumor and ran a 24 urine metanephrine test yesterday to today. Will get results back next Wednesday. He  is also running a metabolic panel and homone test.

[ZeeIn]

Finally getting a full workup by my Endo who is going to also speek to my Cardiologist and neuro.  They all agreed there was a high chance it is an adrenal tumor.  Hopefully all the upcoming tests will reveal something.  Just wish an accurate diagnose would not take so long to get.  

[rumpled]

Can you get your docs to talk to each other? Or  you need new docs (esp. the psych).

But been there on the bouncing thyroid, no one listening etc - all my probs were pituitary.

[ZeeIn]

Wow.. It did. Whew.  

[ZeeIn]

Great. My Cardiologist just told me all of that was caused by my Neurocardiogenic Syncopy.  Put me back on Toprol. I had to bring him pictures of my BP meeter because he didn't believe my heart rate and BP would get so high and then just crash.  My Neurologist said it was an Autonomic problem since I flunked the ENG and Balance Teat. My Gynocologist bumped up my HRT to curb the massive sweating. My Primary ran the 24 hour Urine test and several blood test and sent me a letter saying everything looked fine even after reading these values.  I did have an Abdominal Ultrasound be my Gastro Doc because of the Pain.  She also did another Endoscopy and found more Polyps and noticed some on my Gallbladder via the US.  The US could not get a good image of the Adrenals, but stated the image was not clear, but no signs of any abnormalties.  This has all been going on since May or even longer as I think about it.  Oh, and my Neuro sent me to a Psych who diagnosed me with Anxiety and Panic Disorder and Severe Depression.  I was told the Headaches were caused by the stress of all this other ****.  Interestingly, my back went out on me and my Spine Doc put me on Prednisone.  My Rhuemy sent me for an infusion of Rituxan which begins with a bag of Benedryl and another bag of some good ole Steroids.  How funny I started to almost feel normal again.  I decided after all of this and my Neuro and Cardio Doc stating Autonomic issue, I made an appointment with my Endo's NP for next Monday to check on my Adrenals since the Epidurals always send me into Adrenal Fatigue (diagnosed by my Endo who only looked at prev reports and stated that was my problem). Follow up as needed so my Primary said he would monitor my Thyroid. Funny thing, it has been going back and forth for the past two years Hypo... Hyper..  My Neuro started monitoring it also and said it was Hyper.  My Primary ran another test... Hypo.. remain on the same dose of Synthroid. Yes, my head has been spinning because of this.  I was looking at my Insurance report trying to document done things for Social Security (I'm on LTD) and trying to get SS... Any who.. I ran across a few of the Blood Tests that were reported to UHC.  I copied and printed them all off and because it shows no Highs or Lows on the report, just values, I started marking all the values that appeared High, Low and Borderline.  Wow, I was amazed at all of these counts and that none raised a flag at all. I remember 5 years ago seeing these Norepin and C. values as high, but my Primary then also dismissed them and the EB which for some reason has gotten so much higher.  I did get an alarming report back re: my Platelets which had gotten down to 118.  My Oncol who handles my Ritux. Treatmnts ran the blood test one day when I came in there nearly lifeless and gray.  However, they have bounced back since then to my normal low 200's value.  Wow... Sorry for the book.  Not sure this will even post.  

[rumpled]

Read up on the symptoms of pheochromocytoma.  I think you will find your answer.

    *  Headaches (severe)
    * Excess sweating (generalized)
    * Racing heart (tachycardia and palpitations)
    * Anxiety / nervousness (feelings of impending death)
    * Nervous shaking (tremors)
    * Pain in the lower chest or upper abdomen
    * Nausea (with or without nausea)
    * Weight loss
    * Heat intolerance

[ZeeIn]

Hi!  I know this was a few months ago, but did you ever find out what was causing those elevated values?  
My values were not as high, but they were high.

Norepinephrine   (0-399)   766.0
Catecholamines  (0-699)  798.0

Just wondering if there is any connection to those values and Epsteins Barr. Just a long shot.  I see my Endo next week.

Epstein Barr Virus Capsid Ab.igg (0 - 99)  3381.0
Epstein Barr Virus Early Ab.igg   (0 - 99)     350.0  
Epstein Barr Virus Nuclear Ab.igg (0 - 99)  2050.0  

My Adrenal Glands give me a fit each time I get an Epidural for my back and neck (spinal stenosis....).  I'm just wonder with those first readings if it would explain more issues with my adrenals since the inception of my cascade of problems 5+ years ago.

[rumpled]

I would think first a pheochromocytoma.