Find another doctor. Get copies of your tests and all, and find a pituitary center (larger hospital or university will be best bet) and get in there.
Thanks for your response. I just had another 24 hr urine cortisol test and it is elevated. Thats now 2 elevated ones Ive had and a dex test that did not suppress cortisol to low value. But the endo said, well you dont look like you have cushings and she just dismissed all my other symptoms! An MRI of brain was all clear....I just have an adrenal mass that has grown since last year. Last year it was 2.0 cm and now its 2.3 cm... she apparenrly didnt care about that either! I guess all my flank pain and lower back pain and the tons of other symptoms I have are all in my head!!! I contacted the endocrine surgeon I saw back in the summer and left a message with the secretary about mt recent test results. I have to wait to hear back from her. I dont know what else to... I can barely function and Im afraid to move as the flank pain gets worse or I feel like passing out. God help me. :(
Hi there. Have you had any tests regarding the Mass? Its strange. This could be causing lots of issues? Surely you have had blood work done to see if its active?
There is a doc in the uk who specialises in that field of Adrenal Adonomata. You may need adrenal vein sampling done, this is the gold standard test for evaluating the adrenals. Docs dont like doing the test, its akward, invasive and tricky.
The uk doc is prof morris brown. It could be worth looking at some of his many papers. Have you any BP issues?
I have BP thats very high at times and am suspected of having small adonomata. The only thing that gets my BP down is Spiro med . ita a steroid type drug used to treat adrenal; issues. I hate it.
keep us posted
Those are the tests I did to find out if its active, dexamethasone and 24 hr urine cortisol tests, and I spoke to another doctor about my results and he believes its active.