Have you ever been tested for Lyme disease? Please do if you haven't !
Have you ever been tested for Lyme disease? Please do if you haven't!!
Did you ever get any answers? I'm going through same thing at the moment
This is an old thread so you may not get a reply from Grizz...
I am assuming you are female - but the endo may push PCOS anyway (seen that a lot) so make sure you get copies like you did and read up on what he or she is testing you on. Even though DHEA sulfate is an adrenal test - they need to go up further and test, IMHO, some pituitary as they need to test for other androgens such as LH and FSH to see what is going on to see if the signalling is off (not likely if testosterone is ok) and some other hormones like cortisol can effect DHEA sulfate as well.
I do hope they do some imaging as well.
I have a DHEA Sulphate level of 812 and my testostrone was normal. I am getting an appt with an endocrinologist. What did you find out with your condition? I don't have any of the symptoms of PCOS that I have read of anyways. I am just stressed to the max about this waiting game. How did your tests come back? any update?
Just came across your post,I see it is from a while back. I have an identical story and I am still looking for answers. I just wonder how you have been and if you have found any answers. All of this came about after my sons birth. He just turned 4.
I would love to connect.
Lisa
I was amazed to come by your posted comment. I also had a daughter 3 years ago and ever since then have had some things here and there that were odd. I finally had a complete hormone test done and found my DHEA and DHEAS levels to be high. I have also had some hair loss and irregular menstruation. I am in the middle of having some tests done by an endocrinologist, but at this point have no clear answers. Do you know any more information since you last posted?
I am here to tell you that you CAN have it both together.
It is called cyclical Cushing's. I had it.
I know many others that had it. My BP was also low. My cortisol tests were largely low, DHEA high, and I gained weight. Not everyone has all the symptoms or all the same symptoms.
Cortisol can be up and down like the wind. It fluctuates naturally anyway.
I did have PCOS too as well as thyroid and other issues so my picture was even more muddy though. And I had another pituitary tumor too. I was (am) a mess. I had high testosterone.
As for the normal cortisol, it can be a high CBG (cortisol binding globulin), lab error, or medications keeping it down, or time of day being wrong. All my cortisol was high high high at night - I never slept well but I was so low during the day that my 24 hour test averages were pretty normal but the 10 hour tests were very high!
It just takes a lot of testing and a very savvy doctor!
Both my testosterone AND my thyroid levels were NORMAL!!!! one more reason I'm so confused..... Also, my doctor has already looked into PCOS.... not that problem... I have three children and no problem getting pregnant..... my blood cortisol was also normal!!!! That is why my doctor is now looking at cushings syndrome.... What happens if I have to have an adrenalectomy????? One thing I don't get is that in cushings you get high blood pressure... I have drops in my blood pressure.... as low as 70 over 40-somthing..... my symptoms almost contradict each other.
I can tell you that some women who have PCOS (polycystic ovary syndrome), do have increased levels of DHEA and they will also have increased levels of testosterone. You might want to consider asking your physician to check your testosterone level as well.
Best,
PlateletGal
What are the symptoms of polycystic ovary syndrome (PCOS)?
Not all women with PCOS share the same symptoms. These are some of the symptoms of PCOS:
infrequent menstrual periods, no menstrual periods, and/or irregular bleeding
infertility (not able to get pregnant) because of not ovulating
increased hair growth on the face, chest, stomach, back, thumbs, or toes—a condition called hirsutism (HER-suh-tiz-um)
ovarian cysts
acne, oily skin, or dandruff
weight gain or obesity, usually carrying extra weight around the waist
insulin resistance or type 2 diabetes
high cholesterol
high blood pressure
male-pattern baldness or thinning hair
patches of thickened and dark brown or black skin on the neck, arms, breasts, or thighs
skin tags, or tiny excess flaps of skin in the armpits or neck area
pelvic pain
anxiety or depression due to appearance and/or infertility
sleep apnea—excessive snoring and times when breathing stops while asleep
http://www.4woman.gov/faq/polycystic-ovary-syndrome.cfm#e
Where are your thyroid levels at?
The 24 hr urine is a good idea to see what your adrenals are producing at certain times of the day. The saliva testing is pretty acurate too. I heard better than urine - I had saliva done and blood
I don't think you can have both Cusing's and Addision's together - that I am not sure of.
Your symptoms you describe are found in many thyroid patients - and the labs that are done for many are not very ..... well....... informative or conclusive.
Since you are going through some pretty detailed adrenal tests - I would suggest running a Free T3 - Free T4 and a TSH test on your thyroid function too.
It can't hurt -
I posted a link in health pages ( getting to more ) here - I also suggest looking over at the thyroid board on their health pages too for many things you may find that resemble you.
Estralinha - over on thyroid can definately give you top information on your recent labs and your questions on DHEA.
I am just learning more on this and not comfortable yet on saying any certain things. Enzymelover here too is very well informed.
The heat thing is so "thyroid" you locked in one of the symptoms many have a tough time discribing.
Thanks Goodness no tumors!! Let's see if moving forward on more hormone testing will help you.