no diagnosis

[walkingbyfaith99]

Reposting this with more information.I have had "episodes" since I was about 16.My mother has had the same sporadic symptoms,though not to the degree as mine.
Episodes of weakness in my extremeties.I would have to use my good arm to move my other one around.Or I would be dragging my foot all day.Or both legs would be affected & I would not be able to walk.I also have minor episodes, where I might not be able to move my fingers,they sometimes curl up into my palm for several hours to a day.I may not be able to wiggle my toes or one side of my foot will be numb and I will trip. Minor ones happen several times a week and last 6-24 hrs,the major ones happen several times a year and last 24 hours or more & then the muscles involved are painfully stiff for about 24 hours.During the attack,I usually need help dressing,using the restroom,etc.After a week or so back to normal.Extreme cold/heat seem to trigger & lack or sleep or sickness.
Tests:
ER 2001-Worst attack up until then,could not walk.ran labs and potassium was 2.8,everything else normal.No treatment.resolved in 3 days.
PCP ran abs,thyroid,autoimmune,etc..normal,every 3 months.K usually around 3.0.
Lyme neg;mono;neg
Neurologist 2006 (not during attack,took 3 months to get appt)Did EMG,NCS-no abnormality lower leg
MRI of spine w/o dye (I did not make it through the other one because of claustrophobia)
Due to low-normal potassium,tentatively diagnosed Periodic Paralysis either hypo / normo kalemic.Refer for muscle biopsy at later date for confirmation.
Geneticist: Andersen Tawil-neg
May10- Neuro appt with MDA specialist.again,normal exam,because it took 3 mos.to get in .Looked at previous labs,said No to periodic paralysis,scheduled biopsy.Report states tissue was compromised,but otherwise shows normal muscle tissue.Dr.decides my mother and I both suffer from a psychological disorder based on a 4 year old EMG not done during weakness,a set of MRI images not completed & a muscle biopsy that was compromised.

[walkingbyfaith99]

If I thought for even a minute that it was stress related I would go down that avenue,but,I know my own mind and body and while it does seem to happen when I am worn down or sick,stress has not been a contributing factor.I am seeing an endocrinologist in  few weeks and getting all of my vitamin,mineral and hormones checked.It very well could be a  deficiency of some sort that becomes worse when my body is under physical stress,but mental stress is not the issue.If it happened when I was mentally stressed,it would be a permanent issue :)

[yorba2]

I meant stress might be precipitating these attacks.

[walkingbyfaith99]

That is very rude.Could you relax if all of a sudden your legs quit working? or your muscles contracted  and did not let up and it felt like every fiber being ripped apart to even move? Not likely..The only stress I have is having something wrong with me and no answers.

[yorba2]

Maybe its stress related? Relax.

[allmymarbles]

I tried everything and nothing worked. Then I focused on B1, and probably took 100 mg. a day for a few days. I got results almost immediately.

My brother called me recently because he developed sciatica. The B1 did not work for him, so he may have a compressed nerve. I suggested he go to a chiropractor. I guess one could have nerve damage and then nothing would work. But have your friend try the B1. It's fast and cheap and he might be as lucky as I was. It is now 20 years since I got rid of that pain. I am on regular vitamin supplements, but occasionally take a booster dose of B1.

[compnet]

Sciatica?  Really?  What formula and dose?  How long did it take to heal you?

I know someone that would love to know and I'll try to pass on the information.  :)

[allmymarbles]

Good suggestion. I would add B1 to that. It cures me of cramps and, years ago, it cured me of sciatica.

[compnet]

Temporary paralysis has some connections to magnesium on google.  I'd try minerals: Magnesium, Calcium, Potassium, and Sodium.  And Vitamin D to go with the Mag/Cal.

These are important for normal nerve and muscle function.

[allmymarbles]

I just remembered. The woman I told you about who had "hysterical paralysis," had a mother with the same symptoms.

[walkingbyfaith99]

Oh,I have been to the emergency room numerous times.They only check reflexes and take blood.they decide I am not going to die from it,so they tell me to see a neurologist which I do,in about 3 months when they can make me an appt and by then,the symptoms are gone,starting the cycle all over again.

[allmymarbles]

Long ago I knew someone with your affliction. It was diagnosed as hysterical paralysis. It could be that they gave that diagnosis because they couldn't find a physical cause.

The next time you have a serious episode, go immediately to the emergency room. That way you will be examined whilr there are symptoms.