Aa
update- progression
So mom has now lost the ability to hold her head up. Its now in fact where she moans if you try and help her with it. I have noticed when we get her to sleep she will relax it back, but wakes up to the same problem. Shes also losing muscle and we tryto load her on calories (both the good ones and the bad) but her body doesnt seem to want to retain them. She is still walking but runs into everything especially since her head is always down and refuses her walker. Moms had a couple falls and cant maneuver steps anymore. So....Tuesday is our move day into a specialized ALZ facility. They have excellent reviews and I've met the staff several times. I know at this point they'll be able to provide her better care than I can. This is the only thing that makes me feel better about the move. Hopefully they can help her like I cant. She is definitely nearing the end and this actually feels more like a hospice move than a nursing home move, but I'm so, so sad :'\
I am so sorry to hear about your mom. It is difficult but at least she will be getting a lot of specialized care.
Just a thought - has she had a chest x-ray lately? My MIL kept leaning over and her head down - it was aspiration pneumonia! She was not strong enough to cough.
Just a thought - has she had a chest x-ray lately? My MIL kept leaning over and her head down - it was aspiration pneumonia! She was not strong enough to cough.
COMMUNITY LEADER
wow so sorry for your mom and you . you need to know that this move will be the best choice for her and you never feel bad about trying to put your mom , where she can get good care and help with her problems, just always drop in at different times so you can see whats going on with her and how they are treating her.
yes my mom lost her motor skills about 11 months before she passed. her legs just stop working and that was it , she was bedridden for last 11 months of her life so hospice came to our home and saw her.
she could hold her head up and she still talked to us and knew who we were even up till the day she went into a coma, so we had our good times with her even in the last stages of this.
they told us the last two things to go before they pass is first they loss their smile, mom had a Beautiful smile and she smiled a lot most days but two or three days before she went into her stroke coma she didn't smile anymore , I miss that smile so much, but I guess its because they know and having nothing to smile about .
they say they know the Hearing does not leave them till they pass, so even though they don't talk or look like they don't understand they do. they hear everything you say so be careful not to say anything to up-set them. like how long do they have , they hear everything you say.
with mom I would lay with her in that tiny bed and tell her how she was the best mother on earth, and how blessed we 4 girls were to have her as our mom. and tell her stories of my childhood that she was in. I wanted mom to know how loved she was and how much we loved her. I told her I would be there with her not to be scared.
its not easy my tears still flow as I talk about it and as I look at pictures of her as it took her away.
I can say the one thing I regert and that's not getting her on tape, she told me everyday how much she loved me and than their were times she told me how bad I was lol, but I so wish I had taped her talking , so I could hear her sweet voice now. not sure if that's something you would want but wish I had, I had everyday with her and never though about it till one day I listen to a old phone message, it was not her but than I thought why didn't I tape her talking to me. oh well I just have to remember her sweet voice in my mind.
prayers for you and your sweet mom, hug her every chance you get and let her know your not far from her new home she can call you anytime and you be there ( even if she cant ). mom liked to know I was just up-stairs and would be back in a min. .
GOD BLESS keep in touch. Heart
yes my mom lost her motor skills about 11 months before she passed. her legs just stop working and that was it , she was bedridden for last 11 months of her life so hospice came to our home and saw her.
she could hold her head up and she still talked to us and knew who we were even up till the day she went into a coma, so we had our good times with her even in the last stages of this.
they told us the last two things to go before they pass is first they loss their smile, mom had a Beautiful smile and she smiled a lot most days but two or three days before she went into her stroke coma she didn't smile anymore , I miss that smile so much, but I guess its because they know and having nothing to smile about .
they say they know the Hearing does not leave them till they pass, so even though they don't talk or look like they don't understand they do. they hear everything you say so be careful not to say anything to up-set them. like how long do they have , they hear everything you say.
with mom I would lay with her in that tiny bed and tell her how she was the best mother on earth, and how blessed we 4 girls were to have her as our mom. and tell her stories of my childhood that she was in. I wanted mom to know how loved she was and how much we loved her. I told her I would be there with her not to be scared.
its not easy my tears still flow as I talk about it and as I look at pictures of her as it took her away.
I can say the one thing I regert and that's not getting her on tape, she told me everyday how much she loved me and than their were times she told me how bad I was lol, but I so wish I had taped her talking , so I could hear her sweet voice now. not sure if that's something you would want but wish I had, I had everyday with her and never though about it till one day I listen to a old phone message, it was not her but than I thought why didn't I tape her talking to me. oh well I just have to remember her sweet voice in my mind.
prayers for you and your sweet mom, hug her every chance you get and let her know your not far from her new home she can call you anytime and you be there ( even if she cant ). mom liked to know I was just up-stairs and would be back in a min. .
GOD BLESS keep in touch. Heart
Hi Niko,
They have several programs and specialists that come in and help whichever patients they think they can, everything from entertainment to basic life skills, etc. And there are other people there like her, with the Early Onset, so it's kind of a comfort to see others doing the same things. 90% of the residents are still older, but the staff is relatively young and energetic. So I'm hopeful this last stage will be as comfortable for her as possible.
They have several programs and specialists that come in and help whichever patients they think they can, everything from entertainment to basic life skills, etc. And there are other people there like her, with the Early Onset, so it's kind of a comfort to see others doing the same things. 90% of the residents are still older, but the staff is relatively young and energetic. So I'm hopeful this last stage will be as comfortable for her as possible.
Hi havincinco.
Do you know if they will provide some physio for your mom?
I had my mom in a home where the funding had just been approved
for a physio program when she became a resident, however, the funding ended only after a few months, due to the crisis (in greece), so the year after I returned for a visit, she was on a wheelchair.
Having a bit of a balance issue, they decided to put her on this chair, to play it "safe".
Well, prolonged lack of movement resulted in muscle atrophy and that meant that she could not walk anymore. It was sad to see her like this. Other than that the home was nice and clean and the services were more than adequate.
Best wishes.
Love & Light
Niko
Do you know if they will provide some physio for your mom?
I had my mom in a home where the funding had just been approved
for a physio program when she became a resident, however, the funding ended only after a few months, due to the crisis (in greece), so the year after I returned for a visit, she was on a wheelchair.
Having a bit of a balance issue, they decided to put her on this chair, to play it "safe".
Well, prolonged lack of movement resulted in muscle atrophy and that meant that she could not walk anymore. It was sad to see her like this. Other than that the home was nice and clean and the services were more than adequate.
Best wishes.
Love & Light
Niko
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