My mother died of ALS last November 2nd. It was a VERY long, awful ride! At first I felt at peace when she died as she had been through so very much, she deserved peace.
My sisters, father, and I took turns caring for her so that someone was with her 24 hours a day, 7 days a week and with the help of hospice we were able to do this. Near the end it became very hard, actually impossible to do more than one day and one night at a time. One day she wrote me a note that said, "when are you going to stay for two days and two nights?" I never did and I cannot get it out of my mind! I wish that I would have done it! That is my one and only regret that I have and I will never get over it! I will never forgive myself!