Hi, I am new to posting here. I put up a post the other day with no response as yet as probablya bit earlyto get one, but was wondering if there is anyone who could help please?
I have been experiencing continuous pain and pressure at the back of my head for some time amongst other symtpoms. On several ocassions I developed intracranial pressure so great I was unable to form words (slurred) and during the severe crushing pressure (2-3 hr duration) all of my muscles went rigid/relax/rigid and so on-agaon 2-3 hrs,
I recently looked at an MRI taken a few years back (pre recentish crushing intracranial pressure incidents) and saw what appears to be aneurysms or something at the back of my head, coincidentally the things on MRI are in the areas I find myself clutching on a daily basis due to the pressure pain there.
In my profile on here, I have uploaded some photos of the MRI where you can see what appears to me as a layperson, to be aneurysms. They show on the 'vein' mri but not on the 'normal' mri.
I would really appreciate it if someone could have a look and let me know if this is an aneurysm as it appears I have one on one side which joins to one along the base to one on the other side.
Now as the mIP imaging (one that shows viens) is one of several imaging series that didnt show veins, I am wondering if perhaps the radiologistdidnt look at it or missed it, or if its just me and looks like something concerning and actually isnt. Seems a bit coincidental though that in an area I have constant presure and pain there is something showing in MRI in same area.
Hopeit isnt too inappropriate of me to post here but trying to get answer so I dont feel stupid writing to Dr. As I feel it might be disrecpetful as a layperson to write and say 'hey I think you/your radiologist missed something that I,with no education can see; as it seems a bit arrogant of me to presume I am noticing something they havent. Thanks in advance folks :)
I was just diagnosed with Ophthalmic Segment ICA and waiting for a Doctor appointment. Tell me more of your options..
I recently had surgery for a 7mm aneurysm on my left opthalmic artery. It was found during a routine screening due to a history of aneurysms in my family. My mother, my two brothers, and I all have had aneurysms so the genetic component is very strong there. My surgery was done directly with a craniotomy and I was hospitalized for 20 days due to complications from a cerebral spinal fluid leak. The leak was treated in the hospital with a lumbar drain on a couple of occasions and diamox medication at home to decrease the production of spinal fluid. The biggest piece of recovery has been making sure to rest when your body tells you too. Initially this is often. I still find taking a nap in the afternoons very helpful as eye fatigue can be rather significant. Feeling more like myself lately which has been nice. Having my hair grow back has also been a definite plus. I will be returning for follow up screenings I believe yearly and have joined an aneurysm support group that meets at our hospital once a month. I find it helpful to talk to others who have been through this. Good luck to you. Everything will be alright.
I have a 4mm aneurysm on my left ophthmalic artery in my brain
Where are you? What doctor?
I have had an out pouching. It is now a ophthalmic annie. I go for my first consult on the 28th of January with neurosurgeon. My regular neurologist referred me. I am a runner and have been told by my regular neuro not to run or exert any energy that makes me flush. I have four beautiful children, between 6 months and 7 years. I need to run and I need to be here for my children. To those who have had the surgery, did you have restrictions still? All the research I have read from neuro journals suggest that ophthalmic annies are uncommon, but rarely rupture. I just want to run again! Thanks!!
wow so i just found out my mom has an aneurysm on her left side it is 9mm and its pressing on the optic nerve so she is having problems with her sight .i am very worried and scared we are waiting to see what the surgeon says she sees him next week . this is very scary for me as well as my mother has any one had any side effects after ther surgery and how long befor you can drive
Wow, I had no idea anuerysms could break thru bones. You have been thru a lot!!! I welcome any information you can add, I go to my neurosurgeon at the end of the month and it would be great to walk in with an idea that a whole other approach to my annie is possible. Hope your appt goes well.
Nice meeting you too!! See you there.....
I don't know where it is located but it did sit on a bone which it broke through. When I go in on Monday for a follow up, I'll ask. The coiling was my only option but the stent was placed to keep the coiling in place.
Wow, so glad it was found and yes, you have a pcp who followed through. Always, glad to hear good news. I'm curious, my first doctor told my mine could not be coiled and its an opthalmic annie....you've just given me hope and good reason for going in for that second opinion, which will be later this month. If you don't mind my asking do you know where on the opthalmic artery it was? Just wondering if that matters....either way woohoo you are doing fine and on the road to recovery. I love your story of how quickly you were taken care of....again, it gives me hope ;-) Hope your eye sight heals up real nice. You take care and let us know how you continue to do.
I just got home from surgery on an opthalmic artery aneurysm. I had coiling and a stent. My aneurysm is 16 mm. I'm feeling fine but having a few issues with my sight. I feel very fortunate it was found. I had no symptoms until waking one day with double vision which went away by mid afternoon - that was in May. I'm grateful for a wonderful neurosurgeon and for my primary doctor who didn't just chalk it up to "getting older". I'm 52 - I thought I had an inner ear infection but he asked for an MRI to "be safe". I found out immediately and was sent to the surgeon who studied it to figure out the best course to take. I am blessed
Thats a good way of decribing the dye experience - it was like a hot flash. Thankfully, it only lasted a short while ;-) I have had these before and do not look forward to them in the future.
I do hope you get some movement on your parotid. It is unfortunate, sad and frustrating sometimes dealing with the docs. I tell ya, I totally take it in stride now. One of the first things I find out from a doctor is their medical philosphy on what's going on with me. If its a closed sytem or way of thinking - I then know not to waste my time or energy with them. Its saved me lots of neurons ;-).....see you in the Autoimmune forum.
You are very much like Cath278, who was the very first person I met on here last year. She helped me through getting use to the forum and we still chat with one another today. Nice to meet you Joyce and thanks for your help.
Haven't found out yet what anyone intends to do for the parotid!! You look right in their eyes and say, "what about my swollen painful parotid?" And they look right in your eyes and say nothing!! I've been shuffled out to doc after doc...no real answers yet, but, I'm not giving up...someone is *Going* to tell me what the heck is going on!! Even if I have to beat the answers out of them! LOL Speaking of that dye, it makes me want to rip every stitch of clothing off...sort of like a hot flash...if you haven't had those yet, that's what they feel like!! Keep looking for answers, we can't all be crazy hypochondriacs! lol
Great suggestion. I've often wondered if I have an autoimmune disease since the doctors keep saying both the anuerysm and pituitary tumor are not the cause of my problems. If you ask me, I would say thats plenty. But I do have symptoms that cannot be explained by them.
I can appreciate your sense of humor. Its what gets me thru a lot of the days ;-)
Had the CTA today - wow, forgot that when they inject the dye it makes you feel like you've gone to the bathroom on yourself.....that was not pleasant at all, Lol. I'll find out later this month the results. For now, I will gladly take your suggestion about the autoimmune forum.
What are they going to do about the Parotid gland? I know someone who recently had surgery and saw an episode of 'Mystery Diagnosis" that had that on it.
Be well ;-)
Oh Wow! I didn't know that you had a tumor!! How scary!! I share some of your symptoms...symptoms which have lead me to suspect that I may have one or multiple,
autoimmune disorders, I am being tested right now (blood), to see if I have Sjogren's Syndrome. I also have an appt with an Endocrinologist (possible thyroid issues, other than enlargement, nodules) and I have an appt with a Rheumatologist, which is *the* doctor to see if you have autoimmune disorders. While your case could be totally different, I would suggest that you go to the Autoimmune Forum, and see if any of your symptoms match up...just post your symptoms and I'm sure lots of members will give you their take on them or possibly steer you in the right direction...please let me know what you find out...Oh, I don't have any symptoms from my annie, it was found when I had to have a face CT due to a swollen and painful Parotid gland...It;s the salivary gland that is situated between your ear and jaw, just in front of the ear...I looked like a one-sided chipmunk!! LOL Keep in touch!! ;) joyce
I had a headache at that time for 2 1/2 months solid. Was having boughts of vertigo that would last 2 weeks at a time and a whole host of other symptoms. Was absolutely exhausted by noon and felt drunk by end of the day and was tested for diabetes. Its hard to know what to apply to the aneurysm or the pituitary tumor. I think the doctors would say it was found by accident. But who really knows. I do still have symptoms as of today. Still have the headaches, dizziness, foggy thinking, short term memory loss. I'm sure there's more but that's all I can think of right now. hope some of that helps.
Do you, or did you, have any symptoms that led to your diagnosis or was it found by accident?? Do you have any symptoms now?? Thanks for your info!! ;) joyce
No, you are not a freak of nature ;-) There are many of us - this board is just beginning to get a few regulars. I am a little over a year into watching and waiting on the annie I have. I go in this week for another test to take a look at it. I wish you all the best. If you have any other questions pls ask.
Dreambabee, I'm so sorry about your Mom, thanks for the reply and for your prayers.
crwstar, thanks for all the info, I will take everything you have said into consideration and will, indeed, stay on top of it...I was really beginning to think that I was a freak of nature!! lol My maternal grandmother dies of a stroke at age 36, and I bet it was an aneurysm...that would have been back in the '30's and down south, so anything was possible, I know that they were poor, so, no big town doctor there...
Hi - I have an aneurysm in the same place. finding out you have an annie can be quite unsettling. Some pointers ;-) make sure you keep your stress down - not always easy but is important. Typically, depending on the size doctors will do a wait and watch approach but not always. It does depend on where it is etc etc. Mine is about 3.5 mm and I'm on a wait and watch approach. I've read some posts on other boards where people had surgery even though they were small and a good thing they did, cause once the doctor got in there it was found that it was close to rupture. Do your homework and get informed is going to be your best approach. Going every 6 months for a ct angigram sounds like a good approach but it is always a good idea to get a second a opinion irregardless. Different doctors take different approaches which is why unless you trust your doctor that you get a second opinion.
I wish you well.
you are NOT THE ONLY ONE! my Mother had the same ANEURISM Sept 12, 2009 in the midst of a hurricane and died 5 times and was in coma for 30 days, she was eventually brought by GOD back to LIFE and is here today with MUCH DEMENTIA as a result of the RUPTURE! Please keep GOOD watch on any symptom! GOD BLESS and My thoughts and Prayers are with you as you WAIT!
wow, I can't believe that I am the only person on here with this type of aneurysm....hhhhmmmmm, should I be worried??????